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I wish researchers would stop using the Fukuda case definition.

Agree: "Stop counting chickens before they hatch, dammit." :thumbup:

:thumbup::rofl:

Possible training for these officials required? Need correct/real examples of conflict of interest? :banghead:

@Snow Leopard @Sean Veto wealthy voters' say on tax increases: :thumbup:

Thanks @Barry This is quite hopeful. :)

Excellent news and hope for pwLC. I hope that ME is not bypassed by these and other researchers

@Michiel Tack Yes, it would be interesting to do a study on this. Alcohol intolerance has been noted by ME expert, Dr. Anne Mildon, Toronto, on page 18 in a Health and Welfare Canada, Laboratory Centre for Disease Control, publication, 1991. The publication title is: Proceedings of a...

Good concept in general to study this. Not being a scientist or medical professional, I defer to @Midnattsol who knows more about this, and said there are deficiencies in the study. Could be interesting to do more in-depth investigation. Good nutrition, if pwME can afford it, and some...

At this point, over 3 decades for me, having PVFS for 2 or 3 years would have been a cake walk!

Sins not taken seriously - absolutely, @shak8 Not just doctors, but others higher up in the health care hierarchy. It may take many, many years, and a trail of harm before some are brought to any kind of justice, such as it is. And, after a bit of a slap on the wrist they can go back to...

Exactly, @Mithriel I agree. FND is not a disease.

"maladaptive pain cognitions". During a painful surgical procedure with inadequate anesthetic, I was admonished not to react to the pain. I guess I had a maladaptive pain cognition. :wtf::banghead::(

n=2 for cfs. My understanding of Qigong is one stands to do the exercises. OI would hamper doing these exercises.

I read a recent article in Bike, a UK motorcycle magazine about Casey Stoner. He is, I believe about 35. What was brought home to me again, is how many decades have been frittered away doing worse than nothing for the people with this disease. Generations of people have acquired this illness...

Interesting that when study PARTICIPANTS answer GET/CBT study questionnaires, presumably favorably, ( possibly, or likely due to various influences), the participants are believed. However, when PATIENTS describe ME as a physiological disease, a living hell that is worsened with exertion of...

Thanks @Hutan Forgot that important bit: it's the IACFS/ME that published this. Astonishing, concerning, and puzzling!

Yes! And, what about having parents and guardians in attendance? Where is social services on this? This "treatment" of children shouldn't be happening in the first place. Canada had residential schools for first nations children for over 150 years. Not now, it ended in about the 1970s. Not...

:banghead::wtf::banghead:

@Hutan @Woolie Thank you for your explanations. I think I understand: these practitioners label what they see in the neuroimaging according to their ideological bias. They are saying brain abnormalities for these people are psychological. But this is unproven.