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@Jonathan Edwards I agree Fibromyalgia is over used. ME was the diagnosis given to me by a ME expert. But another health care provider, neither a ME nor FM expert said I have FM. I do not have FM. I know of someone diagnosed as having Fibromyalgia who only had one symptom of FM - pain. They do...

OK, am I niave in asking, doesn't everyone have some early life stress? And, what about that stress, how is it measured? Some have by many standards a terrible early life, and yet are the picture of health, or as near as. I think some therapists can coax and drag out memories from youthful...

@Jonathan Edwards When I put myself in a physician' shoes as @Hutan did earlier in this thread, I get some of how it must be. To be a doctor in an enormous system where one has to abide by many rules and requirements. And how frustrating it must be when there are constraints on testing...

Yes, @strategist , totally agree. Repeatedly hearing "I can't find anything wrong", can be devastating for a patient who has torturous symptoms with no relief. There are choices, one of them is to try and take things into our own hands. An expensive endeavour with varied outcomes. This is...

Twice, in hospital settings I have not been believed about health issues unrelated to ME. It's demeaning to be treated like a fraud, not deserving of respect; in fact, just the opposite. In the end, the issues were both treated. But not without insults and uncalled for criticisms.

@Peter Trewhitt 11 inch long stainless steel surgical instrument: that's terrible. And, to be repeatedly dismissed. I hope the goof up was recorded and appropriately reported. Very sloppy and neglectful on someone's part. In Canada there is a registry for these mistakes. Not sure if it's...

:thumbup: Absolutely. If a disabled person is receiving government support, and their doctor doesn't believe them, they could be seriously hooped. Lose the house, the relationship, maybe the children if there are any, and on and on it goes. "precious bunch of snowflakes"::rofl::laugh::thumbsup:

Shocking, yet not surprising that pwFM are treated this way in some instances. Sadly, all too frequently. How far would the refusal to treat go? Even life threatening situations? What is it that turns physicians off? Do they wrongly believe that pwFM are benefit scroungers? Are dishonest...

Sounds interesting. Understandably paywalled, but unfortunately would be expensive for individuals to pay for all articles of interest.

However, it is my understanding the origins of the BPS Model are ancient, imbedded in human nature. Starting in our early origins; eg., the concepts of possession by evil spirits, magic etc. The human desires for power, prestige and wealth at any cost, are also ancient.

Thank you very much @DFM for this very in-depth document. Along the way, while reading it, I could visualize my experiences with the medical and psych professions as regards ME. Thanks again.

Below is not the biopsychosocial code of ethics, but rather the British Psychological Society code of ethics. Nonetheless, the non-adherence to a code of conduct likely similar to this one, by some BPS investigators, has caused immeasurable harm to millions with ME. PSYCHOLOGY TOPICS BPS...

ME is of major socioeconomic relevance. But has never had the level of interest COVID-19 has been given. The millions of persons with ME wait with hope, and work for change.

I had an enterovirus shortly before my first round of EBV. I don't know if there is a viral reservoir lurking in pwME, or if whatever virus seems to have kicked things off is the tip of the iceberg. I think the theory that everyday environmental toxins may play a role in undermining our...

:laugh::rofl::laugh:.....perfect!