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Too bad. Seems to me more researchers should spend time getting constructive criticism, instead of clinging to own hypothesises. This is not directed at Prusty by the way, just a general advice that would probably move the field forward

Thanks for the info Trish. Yes that`s what i originally wanted to say, that this would have been easy for the researchers to investigate prior to starting the study. I guess if they were to do a similar study again, they should use actometers (and actually publish the results mind u)

NTNU (The Norwegian University of Science and Technology) is involved with the study and Live Landmark is doing a PHD on this project. Some of it has been funded by involved communes, and the rest i believe is from the research council of Norway. Maybe @Midnattsol knows more specifics Edit...

Thanks! I mean if they still have to go to school for a fair amount of time outside of the exams, that should not be an issue? Sounds like an fishy excuse to me.

The interview was over the phone (which i will never do again, because this journalist many times denied me editing my statement for clarity). E.g. she asked me where in the LP-pamplet it stood that u are supposed to ignore symptoms, but the pamplet is like 18 pages, and I when I could not find...

Thanks for the background Tuller. Ill ask u about this, since I didn't understand something the biased journalist said. When I told her that SMILE did not get any effect on its objective outcome (school attendance), she said that was not correct because something about school being closed in...

I honestly find these people worse than scammers. At least scammers are not usually funded by tax money. These articles are just completely useless, I dont know what else to say about them lol

It is not my fault i got called by a biased journalist choosing to spin the headline and then denied It to be changed. Its not my fault either that people on social media dont read what the campaign is about, and just support whoever they follow. The petition is very CLEAR, i am NOT against...

Ahh ok, thanks for clarifying:)

i honestly cant remember a single time i thought "I cant wait to continue the discussion with X on twitter". Today was a good example, a biased article came out where i presented problems with the design in the forthcoming LP-study. A handful of people then lashed out on me essentially calling...

Exactly.. And As Tuller found out Wyller just did a PACE by changing the primary outcome (steps), when there was no effect on it. He will do it again im sure

I think he means that the one group wont get treatment, before after two months. But that doesnt sound as good..

Yep! She is anti-science when it comes to ME

Surely it has to be? I have never been as shocked as I am today after reading the newspaper. To bash out against NAFKAM that is there to receive anecdotal evidence from patients that experience worsenings from alternative treatment, I have to say is as low as it gets. This journalist, Jorun...

Yes but that will still be camouflaged by the fact that the study is rigged in the sense that its a part of the intervention to say ur healthy

Good points. I am 95 perc sure that if the study goes ahead in its present form it they will get statistically significant results from the questionnaires even though the majority of the responders are still physically disabled and on benefits

I agree, in this case, unless ive missed something, I think the problem is that the nature of the intervention is to hype patients up to believe they are healthy. Obviously this will then affect their subjective outcomes, especially early on, making it important to have a long follow up where u...

Ahh yess I forgot to think about the replication problem. Thats actually a really crucial issue! Thanks Trish :thumbup:

I agree! Although the journalist said it would be a short article, so I don't wanna waste anyone's time in case it does not get included.

I knew i forgot something! I have your first point as one of my main complaints. The trial is literally designed to get placebo effects, so without follow up its pretty meaningless With regards to ur point 2, thats very true! Ill mention that in the context of point 1 Thank u...