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Jen Brea: "I can’t help but wonder if these same folks would have been some of the worst skeptics and gaslighters of PWME, if they did not happen to have it themselves." What a horrible thing to say

Jen Brea:"The conversation has gotten so ridiculous that some people showed me a thread where other people with ME wondered whether those of us with CCI have a form, of “mass hysteria.” Nobody said that? I remember someone writing that people who think ME is psychological might twist the...

Yea i assumed its about neural connections? Just puzzled there is no clear definition of whats actually found (maybe there is and i just didn't see it)

Really interesting read https://me-pedia.org/wiki/1934_Los_Angeles_atypical_polio_outbreak 198 people at the same time.. That`s a lot

They did this one on pyruvate dehydrogenase function https://insight.jci.org/articles/view/89376

No it was 98 % some years ago, but I guess i phrased it an unusual order:)

Yea that seems like a feasible explanation doesn`t it? Lol i wondered about that too, but at least it was convenient for sharing them here

So for some years now i have had episodes where i wake up feeling anxious/outofit, and with a fast heartbeat. I thought it made sense to check for sleep apnea Results: The doctor said its completely normal, but as far as I understand 5 apneas per hour is considered mild sleep apnea, and I...

At the moment ME/CFS could be due to one or multiple disease mechanisms. There`s no good reason to call it a mitochondrial disease either. It`s a syndrome, a diagnosis based on excluding more well known diseases

I just checked before going to bed and after during a sleep study, and mine was alternating between 93-95 mostly. 4 years ago (one year after getting sick) it was 98..

Bumping this.. I cant find it in the article :banghead:

I love this study too! One thing I wondered is what exactly is meant by "connectivity impairment"?

This seems like an typical "lets research something so that we get paid"-study

I did a immune panel once where they found that "Approximately 33 % of the CD4+ T-lymphocytes are CD45RA and CDRO double positive. This finding has uncertain meaning, and should be controlled with new tests at a later time. The rest of the T-cell subpopulations has normal distribution." The doc...

I don`t like it when researchers are fishing for money like this.. I know it helps, but the chances seem very big for this to be a random finding with no relevance to the disease process of ME

@alex3619 Thanks for clarifying, I suspected there was something i misunderstood, as I thought u were in lactic acidosis if u were over 4 mmol/l even if it was transient. I guess our situation is closer to hyperlactatemia (2 mmol/l to 4 mmol/l) usually

Theres a FB-group where ME-patients upload their lactic acid tests results, and given that these devices are somewhat reliable, many of them have readings in lactic acidosis territory. Saw this on Wikipedia: "Lactic acidosis sometimes occurs without hypoxia, for example, in rare inborn errors...

Might this be why ME-patients often have sky high lactate readings, especially after physical activity? Ive always assumed its due to our muscles not functioning well, but maybe it could be due to how the immune system reacts to said physical activity..

Decent article. I feel like investigating the cause for "sickness behavior" probably wont lead anywhere though.. I highly doubt this theory that were genetically stuck in some dauer larvae state, but Ive lately thought what Jonathan thought about ME potentially being a signalling disease, due to...

Coffee pressure:laugh: Gave me a good laugh at least