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Hey Someone anonymous from Norway have produced a very thorough two part series on different topics (PACE, Lightning Process etc.) It has english subtitles so everyone can watch

Yikes, wheres the rumour from?

Good point I would point out that when severe (as myself),it does happen pretty fast. When mild, the delay was more obvious and insidious. However,there was still clear discomfort with OI and fatigue. But the bigger "crash" happened later

I was curious on your thoughts about this one @Jonathan Edwards, if you find it interesting and have the time

That literally IS what he is implying, and the subsequent tirades on social media further prove his disgust of ME-patients who have an opinion. I think there is no point debating this further if we can have two such completely different interpretations of the same sentence.

"I did this by listening to people that have recovered from CFS/ME, not people that are still unwell; and by understanding that our unconscious normal thoughts and feelings influence the symptoms we experience." Esther your interpretation is to me incomprehensible. Hes clearly implying that you...

Yep thats what im thinking. Still seems kinda weird to me as i would expext systematic reduced endothelial function to affect functioning level. Im no expert on the values found in the studies compared to healthy values though, but after rituxME and the high amount of placebo im open to the...

What levels do other groups with low activity have, anyone know?

Awesome Curious that the endothelial function is still reduced with clinical effect of cyclo. Either it doesnt provoke symptoms, or is the cyclo effect possibly placebo? Earlier related research: https://www.internationaljournalofcardiology.com/article/S0167-5273(11)01904-8/abstract...

Everybody knows Ron is stretched way too much for his age For me that's a separate matter to what he said about not being able to find patients for comparison The latter I don't believe

Im not gonna derail the thread, but since were taking about supplements in relation to this paper.. In the 7 years ill alcohol has always given me a significantly increased level of functioning. Not just feeling better, but 30 to 40 perc higher level of function. No idea why.. Slowing faulty...

Aaah very cool

100 perc agree with everyone else. There is no problem giving some small reward for getting tested, and there is never a complete lack of other patients like this. There is something else going on here. When OMF receives so much financial support from patients, they should be transparent about...

Thanks, thats probably what they meant

I was curious what exactly they meant with "energy stress signalling"

Just got through the paper.. Learned quite a bit by reading up on the side. Its very thorough, probably one of the more thorough ive read in this field. I like that they have concrete hypothesizes, not only "more research on X is warranted". Id say its time to replicate these findings by an...

Thanks :thumbup:

Can someone tell me the significance of all the significant up and downregulations in the gene pathways? Seemed to be a lot, but I dont know much about proteomics/transciptomics Edit: Mentioned here i guess: "A feature of our results is the striking difference in the pattern of expression...

Jesus thats horrible.. I mean a lot of things in life are, but thats still pretty crazy