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  1. Midnattsol

    Science magazine, Landmark research integrity survey finds questionable practices are surprisingly common, 2021

    What, are you expecting people to read beyond the positive spin in the abstract and judge for themselves? :laugh:
  2. Midnattsol

    Identifying and Managing Suicidality in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2021, Chu, Jason et al

    We don't know what is meant by "a bit". Dry mouth from this type of drug is a known risk factor for poor oral health, something not everyone is aware of and it is easy to downplay it (I'm not saying you are doing that, but I know at least one GP that does).
  3. Midnattsol

    Identifying and Managing Suicidality in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2021, Chu, Jason et al

    *Raises hand* Of course it would depend on how dry, but I would be worried about my oral health and ability to chew food properly.
  4. Midnattsol

    Lightning Process study in Norway - Given Ethics Approval February 2022

    The Regional Ethic Committee that approved the study has been intervied by NTNU's own university-newspaper: Lokal komite mente tiltakene ME-forskerne gjorde var gode nok The local committee thought the measures the ME researchers took were good enough They only focus on the COI, and that ME is...
  5. Midnattsol

    Lightning Process study in Norway - Given Ethics Approval February 2022

    It has been brought up on here previously. There was also another attempt in 2017(?), with a project from Wyller, and when they didn't get funding they blamed patient activism.
  6. Midnattsol

    BPS attempts at psychologizing Long Covid

    I could not read more than a few paragraphs of this. Registry data, that they claim show nothing serious occurs, have a lot of flaws when it comes to this. How can they make this argument with a straight face?
  7. Midnattsol

    biomolecules: Bioenergetic and Proteomic Profiling of Immune Cells in ME/CFS Patients: An Exploratory Study - Fernandez-Guerra et al - 2021

    Posts on how members have learned science have been moved to the thread An ME friendly way to learn science?.
  8. Midnattsol

    Analysis of Gender Differences in HRV of Patients with [ME/CFS] Using Mobile-Health Technology, 2021, Capdevila et al

    My pulse can reduce a lot in a crash, with an accompanying higher HRV. Other times it will increase. I've heard the same from others. Mine is also clearly affected by my period which I've mentioned on here a few times already ;) I might get some information if it doesn't reduce/increase by the...
  9. Midnattsol

    Lightning Process study in Norway - Given Ethics Approval February 2022

    They also closed the comment section right after Vogt wrote two long comments in reply to the ones already there questionin ghte narrative being presented.
  10. Midnattsol

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Thanks for posting the quotes @Kalliope, I was a bit too tired (and I skipped quite a bit of whatever Vogt said and just read the brillian answer by Trude Schei). After the dax18 piece I have seen some very nice discussion (in Norwegian) about LP and ME, by people not involved with ME. Makes me...
  11. Midnattsol

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Henrik Vogt has been interview by Khrono: Frykter etisk avgjørelse har satt stopper for visse typer forskning Fearing ethical decision has put a stop to certain types of research These important people involved in research does not have time to write similar complaints about biomedical...
  12. Midnattsol

    Lightning Process study in Norway - Given Ethics Approval February 2022

    The funding for this project is part of a program in Norway to increase competence found in state institutions in Norway(I don't think state is the right word), such as hospitals, schools etc. It is a "first come first serve" thing, where funding is given as long as you pass the inclusion...
  13. Midnattsol

    Lightning Process study in Norway - Given Ethics Approval February 2022

    In the project description this is what is said about the follow up data collection (rewritten by me): NAV: 12 months before and 12-24 months after intervention. Follow up conversation: Two, four and six weeks after intervention, and at six months. Additional follow up as needed.
  14. Midnattsol

    Lightning Process study in Norway - Given Ethics Approval February 2022

    NAV is the Norwegian disability institution, they were going to use NAV data to see if people improved their work capacity.
  15. Midnattsol

    Lightning Process study in Norway - Given Ethics Approval February 2022

    We could really need a study like that, but for some reason it has not been done. This might be going off-topic, but I have been wondering if the Norwegian ME Association could ask The universities in Tromsø/Trondheim/Bergen and Oslo(?) to include ME in their population studies. The...
  16. Midnattsol

    Lightning Process study in Norway - Given Ethics Approval February 2022

    This reminds me, last summer when Dagbladet ++ wrote about the project, it was said they used "gold standard" methods, that has not been mentioned this time around. Maybe because someone actually looked at their methodology instead of just assuming the five professors knew better than the patients?
  17. Midnattsol

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Sadly, this is seen as ok as it's "common practice" (what NEM wrote in their decision).
  18. Midnattsol

    News from Scandinavia

    Agreed 100%. I feel people sometimes become forced to say it so they don't seem too "set against" LP, saying it's pure BS and not good for anything and we get the false accusations about not understanding psychology.
  19. Midnattsol

    News from Scandinavia

    This is about mental health care in Norway, but their story about the undocumented treatment "Basal exposure therapy" and how it's been hyped based on one (!) badly designed study sounde familiar. Takes up some points we are familiar with: Bad study design, hype and patient harm. Could have been...
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