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There goes my master thesis :rofl: Or, at the moment I'm more interested in seeing if I can interview pwME on food habits when in PEM.. so much to think about :) I'll fill it in later. This link works for me @Mij: https://app.surveyhero.com/s/cf0c260 The original has some %20 in front of it...

Do you remember what type of diabetes Montoya was talking about? High blood sugar can cause osmotic diuresis (high sugar in the produced urine drags with it a lot of water to "water it out"), other substances than glucose can cause the same thing which might be relevant for us. Then there's...

Nighttime urination was very persistent last year, before that I had only had it on days with dry mouth/dehydration, but suddenly it was a daily (nightly :P ) occurence. By then I'd been sick since around 2011. Earlier this year I was so happy the days I got a full night of sleep, but the last...

Me too. It also correlates with polyuria in my case (dry mouth/dehydrated feeling is not always followed by polyuria, but I very rarely has polyuria without the dry mouth/dehydration at the start of the day). By polyuria I mean I have to pee like four times in an hour even if I only drink a...

Increased ROS in the gut can impair the gut barrier, I wonder if increased ROS in the blood can do so with the blood/brain barrier, then stuff that's not supposed to get into the brain could cause additional problems.

A problem is that many learn that this just simply doesn't happen (okay, I can't speak for all but in Norway doctors learn very little about nutrition and food, and us dieticians-to-be often get the story this does not happen). As an example, if you don't have celiac then you cannot have a...

It's even mentioned in the report from how the research council felt the project went. Not the skewed media coverage (sadly), but that there were tensions between the "BPS and the purely biological camps". They also discuss some of the things you bring up @Peter Trewhitt

'BehovME' was a pilot project in Norway for something like this, where patients had a say in what research got funded.

He does seem to have some specific studies in mind with those examples, including one from UiO, that's good :)

My thoughts as well. I wonder if fragrance oils could be used instead.

I found a sister paper in "Music and Medicine" http://mmd.iammonline.com/index.php/musmed/article/view/679/0 Full text only available to subscribers. Edit: Please note that this study was part of a randomized controlled trial ;)

Another thing about this paper that has been bugging me lately is that it says in the protocol that the study sets out to research the youths that quote: actually did develop CFS 6 months after the acute EBV infection. All the preliminary titles on clinicaltrials.gov, REK, the treatment manual...

I can't believe I missed that. Thanks :) @Invisible Woman put it quite nicely.

What is she referencing with Ioannidis and COVID-19? I've not considered him a hero, he's written about the problems in the nutrition field which has been nice, but at the same time he had accepted some of the bad evidence from the science he was criticising and to me it came out a bit weird.

I am seriously worried about this. I got sick before 26 years of age and haven't been able to work. As of now I'm able to study, but the years I wasn't has put me behind my age-mates and thus my studies has yet to enable me to make any income.

And a change in tight junction proteins which could reduce intestinal integrity and increase the immune system's contact with allergens.

Has anyone heard about this "CBT for CFS" study at NTNU? https://app.cristin.no/projects/show.jsf?id=2063494 English translation of the pop sciency summary: I found this one: "Is cognitive behavior therapy a good treatment for chronic fatigue syndrome?" that might be the same project. It says...

Yes. But the problem comes when you throw ME into the mix. Is digestion too much of an exertion for the pwME in the study? Will they even screen for that? If I'm on the end of my limit a meal can cause me to crash (and the macros of the meal might be important, how digestable the food is...

All the potential and then this? Food and cognition is interesting, but I'd be more interested in long term effects.

The worst is I did not think about the obvious pun when I wrote it :facepalm::laugh: