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My dog was actually screened for this pretty early when he started collapsing for no reason (it wasn't MG). Thankfully we didn't have to waste time on deciding if he was fine all along. Telling the vet a flat coated retriever didn't want to go for walks or run around, and could just fall down...

You get this sort of reasoning with allergies and food intoleranse as well. "I don't ever have to deal with any fussy eaters when there are male construction workers as the table!" I was told after getting a long rant about women and academics and their fake problems. Those males that don't...

Wyller has used "fatigued after exercise" as a way to measure PEM previously, neither objective or actually measuring PEM.

It's not uncommon that "fish oil" is used interchangeably with "marine omega 3s", although the questionnaire can include other sources of marine omega 3s such as algae (or it will have an option for "vegan" which is problematic since there are still plant based omega 3 supplements that contain...

I doubt they had a very good measurement of marine omega-3 intake. Different supplements have different amounts of omega-3's, different ratios between EPA and DHA (some but not all also include DPA), there are also a number of other compounds that can be found in these supplements in addition to...

Abstract Objective Cognitive behaviour therapy (CBT) can significantly reduce fatigue in chronic fatigue syndrome (CFS), but little is known about the process of change taking place during CBT. Based on a recent treatment model (Wiborg et al. J Psych Res 2012), we examined how (changes in)...

And he's involved with the NIPH long-covid team. I have low expectations that it will be taken seriously.

That sounds a lot like a lecture that was given to the Norwegian Labour and Welfare Administration, where the descripton was you had people at "two different planets". One where they "got it" and wanted to get better, and the other with people who believed in a biomedicine solution and would not...

Lysine might help improve iron absorption, but I am not familiar with the background for this recommendation or if it is correct. It was not mentioned in my class about nutrient absorption. As @Arnie Pye has pointed out, ferritin <30 might still be deficient. The reference ranges that start at...

The daily iron requirement for a woman pre-menopause is 15mg iron, that is actually quite a bit! After menopause it is ~9mg. Have you calculated how much iron you eat in a day? If not I can recommend the free tool https://www.kostholdsplanleggeren.no/, it has an option for English right above...

They also had to get approval of the study (or a new study) to not lose funding for the project. I think Forsknignsrådet gave them a year or something to get approval for the project or they would lose funding. Did Steinkopf write about this @Kalliope?

The people in NEM are appointed and sit for a period of four years,no one can sit for more than two periods. I'm not sure if anyone who was part of the committee that removed the ethical approval last time is still part of NEM (there is a new period for 2022-2025)...

They do :whistle:

Posts on the Lancet commentary by Flottorp et al. has been moved to the thread New NICE guideline on chronic fatigue syndrome: more ideology than science? 2022, Flottorp et al.

A number of posts have been moved into this thread from the UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion thread.

NAFKAM has recently updated their page on LP, it says that the last review of their sources on safety was done in february 2022. They have also included that the new NICE guidelines warns against LP (not sure when that was added). https://nafkam.no/lightning-process They also mention the...

I have the pdf if anyone wants to read, I must admit I don't feel up to it today... Edit: I read it anyway :whistle: The ones with a positive opinion is of course not mentioned here ;)

This! I get so frustrated every time Wyller uses this line of reasoning. If we can just get patients to do more so they realize that they won't get ill when doing more, they will do more! That people actually get ill and thus activity is not positively reinforced but actually the opposite (which...

The study itself? The application which includes the methods is the first pdf in post #746, but it's in Norwegian.

The project leader is interviewed in Khrono. Again stating that NEM was unreasonable, and backs it up by saying that the management at the university has been supportive which never happens if a study loses its ethical approval. ME-studie som ble stoppet i fjor har nå fått etisk godkjenning The...