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It did. A problem is that the REKs have definitions of who are allowed to complain. So while patients can complain, we do not fit the criteria of those who should be listened to (I'm not making myself very clear in english today, sorry). The Norwegian ME Association is within the criteria, and...

It's from the .pdf Noir linked to, where the region midt ethics committee writes what they think about this new application in light of the objections from the national ethics committee on the lack of objective outcome meaurements. Google translate of the part I'm referencing: Here is a google...

No need for objective measurements as they will use a validated questionnaire...? Sigh.

I think I might have mentioned this already, but the Norwegian student health survey has included CFS/ME as a diagnosis they track.

Hopefully MoBa and the other studies will have more information, for some of the women in the other studies their vaccinations should not have been around the time there was a lot of news coverage in Norway about menstruation problems after vaccination or infection. I wouldn't take numbers from...

The report is from NIPH, but they are collecting data from multiple longitudinal studies in Norway. A quick look at their homepage seem to indicate that so far only data from UngVoksen (18-30 year olds in Oslo) have been studied. From here...

Ideally the beneficial organisme from the donor should colonize the recipient and you shouldn't need more than one. Of course this is a bit difficult as the microbiome is affected by health status, diet, sleep, physical activity levels etc., so the colonizing microbes might not be able to hang...

The video of Fluge's lecture where he explains their model for ME/CFS pathophysiology, and posts commenting this, have been moved to the thread of the published paper on this model that can be found here: Pathomechanisms and possible interventions in myalgic encephalomyelitis/chronic fatigue...

Where does the assumption that people with a chronic illness just give up since it's chronic? Or that we're all chronically stressed, with poor diets and have no hope? :banghead:

A post on the study "Immunoglobulin signature predicts risk of post-acute COVID-19 syndrome" has been moved to the study's thread that can be found here: Immunoglobulin signature predicts risk of post-acute COVID-19 syndrome, 2022, Cervia et al

In my day to day life I think about my ME as my body having problems regulating various functions which impedes recovery from the most menial of tasks. Potentially also swelling, as if the blood pools, pressure may cause liquid the go into the tissue before reentering circulation through the...

This thread is making me miss cell biology. Me too. Then I tested positive a few years later, without ever having noticed I'd been ill. Maybe I was and just thought it was a bad PEM crash, who knows. While true dark skinned individuals are more at risk for becoming vitamin D deficient, it is...

My dysautonomia has been extremely bad the last few days, and we've had very heavy Rain and generally lousy weather.. I am affected by weather changes, temperature or barometric pressure or something else.

A post on a news media article about the study "I feel like my body is broken”: Exploring the experiences of people living with long COVID" has been moved to the study's own thread here: "Preprint: “I feel like my body is broken”: Exploring the experiences of people living with long COVID, 2022...

Ah, then it makes sense. Thanks for clarifying.

Same with B12. If the levels are within range everything is good, despite the patient could have a problem utilizing B12 (can be easily checked by looking at metylmalonic acid in the blood, which increases if the cells cannot utilize B12. Perviously homocysteine have been used to check for...

The fecal transplant study (the Comeback study) performed in Norway on pwME should be finished with data collection this year (the pandemic has put them behind schedule).

I feel more able to do stuff on days with a lot of sun, but I can also be completely unable to do anything. It is not the vitamin D the skin can produce from sunlight that is the cause of sunlights ability to increase vasodilation. It is the red/infrared lights. There are a few studies on...

Not a recommendation, but there is a new opinion piece on forskning.no about LP and ME. "To clear things up"... – Jeg er frustrert over mangel på etterrettelighet i debatten om ME og Lightning Process - I am frustrated by the lack of accountability in the debate on ME and Lightning Process...

:banghead::banghead::banghead: