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  1. Midnattsol

    Metabolomic Evidence for Peroxisomal Dysfunction in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2022, Levine,Hornig,Lipkin et al

    A recurring problem is that the different metabolomics studies look at different lipids, so it is difficult to say. Beyond phospholipids, there are also the sphingolipids that can influence cell membranes and cell signalling (of these there are a few ceramides that have garnered some attention...
  2. Midnattsol

    (Preprint) Excess risk and clusters of symptoms after COVID-19 in a large Norwegian cohort by Caspersen et al.

    Was going to say this. I hope that previous covid infection will be part of our other longitudinal cohort studies in the future, we have quite a few. (I've been somewhat annoyed that ME is not an illness you can say you have in the questionnaires I've seen) :)
  3. Midnattsol

    Comedians could be prescribed on NHS to help patients struggling with trauma: Bristol Uni

    Aren't comedians more at risk for severe mental illness and suicide? I'm not sure being comedic is good for coping.
  4. Midnattsol

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    For "balance" they should include a patient that got worse, but of course that is not something that is not as easy a story tell publicly (although many have done so). I get so tired of this. I wonder how the project at NTNU goes, will they be able to rehash it into something Forskningsrådet...
  5. Midnattsol

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    NRK has a lightning process recovery story today, nothing about potential harms, only that there is not enough evidence behind the method for it to be used systematically in clinical practice :banghead: Foreldrene fryktet ME-syke Emilie skulle dø – nå skal hun til OL Her parents feared ME-sick...
  6. Midnattsol

    Poll: Does taking supplements to 'support' mitochondria at a particular time of day improve your sleep?

    I take an omega-3 supplement that contain CoQ-10 in the morning, and some of my symptoms, like poor sleep, are stronger when I forget to take it. Not sure about if I believe this specific supplement need to be taken at a given time. The fatty acids at least can have a high concentration in the...
  7. Midnattsol

    Association of Fecal and Plasma Levels of Short-Chain Fatty Acids With Gut Microbiota and Clinical Severity in Parkinson Disease Patients, 2022, Chen

    Wow, they actually collected some dietary information! There have been talk about two types of PD, where one has pre-symptomatic GI changes which could be the cause of the PD symptoms. Gut microbiome metabolites can play into that. I wonder if it is increased gut permeability that make the fatty...
  8. Midnattsol

    Use of Dietary Supplements and Perceived Knowledge among Adults Living with Fibromyalgia in Norway: A Cross-Sectional Study, 2022, Kvael et al

    Umm, I'm not sure I like these questions to test if someone has a good knowledge of "health claims". Take question 6, while it is true that the latest Cochrane review on omega-3 and cardiovascular disease found no effect, this claim is allowed in Norway because guidelines have not been updated...
  9. Midnattsol

    Use of Dietary Supplements and Perceived Knowledge among Adults Living with Fibromyalgia in Norway: A Cross-Sectional Study, 2022, Kvael et al

    In the last population diet survey in Norway 47% of men and 58% of women used dietary supplements (the survey is from 2010/2011, there is another one coming this year or next). Unfortunately they don't mention what type of supplements are used, but only state that if supplements are included in...
  10. Midnattsol

    An Association of Pathogens and Biofilms with Alzheimer’s Disease, 2021

    This is a huge problem in Scandinavia as well.
  11. Midnattsol

    NICE and Cochrane sign collaborative agreement to deliver ‘living’ guideline recommendations

    A few posts discussing Caroline Struthers follow up letter to Gill Leng has been moved into this thread from the thread "Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian".
  12. Midnattsol

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Posts discussing Caroline Struthers follow-up letter to Gill Leng has been moved to the "NICE and Cochrane sign collaborative agreement to deliver ‘living’ guideline recommendations" that can be found here.
  13. Midnattsol

    GPs’ experiences with children and adolescents with functional gastro-intestinal disorders: a qualitative study in Norway, 2021, Brodwell and Brekke

    I wonder what the GP of the patients that came to the nutrition clinic after having had five years of almost daily diarrhea would have answered to a question about how he felt he was dealing with the situation.. This sprung out at me: Some quotes from the interviews: Sigh.
  14. Midnattsol

    What treatments work for anxiety and depression in children and adolescents with [CFS]? An updated systematic review, 2021, Clery et al

    Iodine deficiency can also influence energy levels, and is not easily tested for. A diet interview is the easiest way to screen for it (the other is collecring all urine output for 24h). With an illness that can influence dietary habit for whatever reason, a dietary interview, together with...
  15. Midnattsol

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    Now you are stealing HOPE from patients. Or something... I don't quite grasp their logic.
  16. Midnattsol

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    Espolin Johnson, one of the "24 progessionals" who wrote in Aftenposten in defense of the BPS view when faced with the new guideline, and who has called ME a "fashionable illness" and said pwME can become healthy by "caring less", "changing partners" and "moving" has written a short opinion...
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