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Posts on the new petition to "Set up a national harms reporting scheme for non-pharmacological treatments" has been moved to the new thread United Kingdom: Petition: Set up a national harms reporting scheme for non-pharmacological treatments.

Tronstad has also written on the new guideline (or, a bit more about what might be going on in pwME cells with the guideline as a backdrop): Hva er årsaken til at trening gjør ME-pasienter sykere? What is the reason why exercise makes ME patients sicker? On GET: "The goal of the GET method is...

Three threads on the topic of long covid after breakthrough infection have been merged, and two additional post from the thread Possibility of ME or PVFS after COVID-19, Long Covid have been moved here.

Two posts on long covid after breaktrhough infection has been moved to this thread.

Yes, the homocysteine/methylmalonic acid issue is really only an issue if functional/subclinical is acknowledged in the first place :(

And with B12 it is so easy to say that a bloodtest is "fine", while the lower reference range is really really low... Germany recently updated their B12 requirements from diet, it is now twice the amount of the Norwegian recommended daily intake(RDI). A few years ago I read some Danish...

The Norwegian ME Association has a program for how schools can help accomodate pwME (and reaches out to provide this info as well) :)

And some vetting should be done on what is said in an application. Recovery Norway should not be allowed to be branded as "patient collaborators" for example. They are continously arguing they are not a patient org. when it suits them not to be, but then suddenly they are... :banghead:

Another opinion piece on the Norwegian site forskning.no Some good parts, but continously describes ME as a fatigue condition, and PEM is framed as "post exertional fatigue". Ny ME-veileder innebærer en kursendring i behandlingen av kroniske utmattelses-tilstander New ME guide involves a change...

Beat me to it. That article was just... :banghead: I did not know she was part of Recovery Norge, but that explains a lot.

Ah you know, the subconscious ;) There is always an explanation, you just have to believe :whistle:

I have written about the lack of research ethics education in Norway before, but now there's yet another report that criticises our universities for not having a system to make sure employees are educated about research ethics, and also for not having good systems in place to...

First non-opinion piece on the new NICE guidelines, not surprisingly the competence center "don't understand/are wondering why the new guidelines downplay the importance of individualized physical activity". Storbritannia går bort fra treningsbehandling for ME The UK is moving away from...

The research proposol for the LP study in Norway that got cancelled also included some large figures of money the muncipality would be able to "save".

I can't say I recall salicylates being mentioned much during my courses where intolerances were mentioned either. On the sciene - agree we need to do better. Fructose, like other carbs, is still not considered "essential" in the samme manner as amino acids and lipids the body can't synthesize...

"Exercise gives you endorphins Endorphins makes you happy happy people don't shoot their husbands!"

The worst part is you could likely get adequate information about the diet for this type of study from a semiquantitative food questionnaire with foods that are known to feed the "positive" bacteria. So including starchy roots and tubers (maybe also how they are prepared as cooked + cooled down...

I'm not sure what the added value of collecting data at more sites for illness studies. It is troubling enough we don't know what is "normal" in the sites we have, making it difficult to filter out what is abnormal, regardless if samples are collected from serum, plasma, any part of the...

I'm not sure what you mean, to help with reviewing diets of people involved in studies or in general? For what it's worth I know two soon-to-be registered dietitian's (five year master's) with additional bachelor degree's in biomedicine. We do have the training for helping out in metabolomic...

The last author (Wensaas) is a member of Collaborative on Fatigue Following Infection, so I am not at all surprised they have moved to "chronic fatigue".