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  1. Trish

    Moving from laptop/computer to iPad/tablet - did it help?

    I still use all 3 of smallish laptop, mini touchscreen tablet and smartphone. This gives me flexiblity to use whichever of the 3 works best according to the particular activity and what position I need to be in etc. I use google android devices and anything I put on one is accessible from all...
  2. Trish

    Moving from laptop/computer to iPad/tablet - did it help?

    I used the touchscreen to type, as does my daughter.
  3. Trish

    Moving from laptop/computer to iPad/tablet - did it help?

    Forgot to add. My daughter who also spends most of her time in bed uses a mini ipad for everything - digital art, typing, watching TV, internet browsing, listening to audiobooks etc. Some people go even smaller and use smartphones for all those things. I use my phone sometimes for browsing...
  4. Trish

    Moving from laptop/computer to iPad/tablet - did it help?

    Things to consider might include whether you are using it lying down, sitting on bed/sofa with legs raised or sitting at a desk. I stopped being able to sit at a computer some years ago and initially shifted to a touchscreen small tablet which was great for lying in bed watching/reading stuff...
  5. Trish

    Cochrane review: Interventions for fatigue in people with kidney failure requiring dialysis

    I can see another campaign coming on. Cochrane has multiple reviews for psychological and alternative treatments for symptoms such as pain and fatigue in different conditions. They mostly use data from unblinded trials and subjective outcome measures. However useless such data is, they always...
  6. Trish

    Hypothesis Long COVID as a functional somatic symptom disorder caused by abnormally precise prior expectations during Bayesian perceptual processing, 2023, Joffe

    Lead author: Ari R Joffe, University of Alberta Faculty of Medicine & Dentistry, 4-546 Edmonton Clinic Health Academy, 11405 112 Street, Edmonton, Alberta, T6G 1C9, Canada. Email: ajoffe@ualberta.ca He clearly has no idea just how wrong, insulting and gaslighting this nonsense is. Perhaps...
  7. Trish

    IACFS/ME 2023 Medical and Scientific Conference

    Well, that's one conference I definitely won't be watching. That's a ridiculously high price.
  8. Trish

    Investigating the factors associated with meaningful improvement on the SF-36-PFS ... young people, 2023, Crawley et al

    UK. They fund most of Crawley's research on ME/CFS, and that by others such as Chalder. There's nothing unusual about it, it's the main funding body in the UK for all this sort of research. The APPG is well aware that UK ME organisations don't want this sort of research funded any more.
  9. Trish

    Long-term effectiveness of a [CBT] in the management of fatigue in patients with relapsing remitting multiple sclerosis, 2023, Gay et al.

    Paywalled so we can't see the data. Some key things missing from the abstract: How many of the dropouts were in the treatment group, and when were the booster sessions in relation to the 12 month follow up. It seems likely they will have given them a booster just before the follow up data...
  10. Trish

    News from The Netherlands

    Yes, it's fine to post links to the Chronicle.
  11. Trish

    News from The Netherlands

    Since there is already discussion about it on this thread, you can post it here. If it looks like it needs a new thread, mods can split it off. We don't appear to have a thread on this, so you could start one in this subforum: Other guidelines
  12. Trish

    If someone has very positive reactions to COVID-19 vaccinations, are they less likely to have a bad reaction to the virus?

    Some posts about bad reactions to vaccination have been moved to a new thread here.
  13. Trish

    OpenAi's new ChatGPT

    I listened to the BBC Media show (available on IPlayer) today. It was about AI, and specifically ChatGPT. A cause of concern is that if it's given access to private information or sensitive company information for a task, it stores that information and makes it available when it's doing other...
  14. Trish

    Review Psychological therapies delivered remotely for the management of chronic pain (excluding headache) in adults, 2023, Rosser et al

    So to summarise, there was an immediate small effect on how some patients filled in questionnaires, but it wore off pretty quickly. Conclusion: The treatments don't work. Yet they still say more research is needed, just as the do with all psych treatment research. Surely time to call a halt...
  15. Trish

    The real tragedy of discovering fraud in psychology is realizing that it doesn't matter

    It's an entertaining article, and I'm sure the author is right that much of what claims to be research in psychology is bunk, not only the outright fraudulent stuff, but the stuff where the researchers treat it seriously, design questionnaires and experiments they think will show something...
  16. Trish

    USA: Mount Sinai PACS clinic and Dr David Putrino

    Well, I guess if you set up a clinic to 'treat' Long Covid patients, you are doomed to fail because there are no known effective treatments. Sure there are some symptomatic treatments, but no cure other than rest, time and luck. Surely the staff of a clinic like that should know that, and not...
  17. Trish

    USA: John Hopkins Medicine: Chronic fatigue syndrome

    Oh dear. Profound tiredness, diagnosis by any random 4 symptoms from the list, no mention of PEM, treatment with aerobic exercise, corticosteroids, antidepressants.... Sounds like it hasn't been updated since the 1990's.
  18. Trish

    Well-known, famous people with ME/CFS (public thread)

    I hope it doesn't make her ME worse.
  19. Trish

    Trial Report Home-based testing protocol to measure physiological responses to everyday activities in ME: a feasibility study, 2023, Clague-Baker et al

    You have explained it well, and it's great to have feedback from a participant. Thank you.
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