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All done in mice. Is it reasonable to assume this will work for humans?

'Post-exercise discomfort'. Yet another variation on PEM designed to make it sound minor and just what everyone gets after a lot of exercise. They have no clue.

#MEAction’s Summer Work Heats Up Items about Mayo Clinic, US Congress, UK activities and more.

Copy of details: Spotlight on Long Covid: Part 3 About this event Date and timeThu 28 Sep 2023 from 12:00pm to 2:30pm LocationOnline At least 65 million individuals worldwide are estimated to have Long Covid, and more than 200 symptoms have been identified and attached to this...

I think that's the most clearly written research paper I have read. The results are interesting, particularly the effect of cognitive testing. Given that it is listed last of the activities I wonder whether it was done after the other activities, and therefore any cumulative effect might have...

How do people reading an article in a research journal get alerted to comments on PubPeer?

I'll put it in the weekly news this week. But while this reaches people who follow pwME, which is great what I want is to reach clinicians who need to be better informed.

It's an excellent letter, @rvallee. Thank you for trying. There must be a way readers of the article can be alerted to all the responses that haven't been published. Maybe some tweeting by pwME with big followings linking the thread with the letters. Maybe @dave30th can do an article. Maybe...

Thank you, @Bantram. I looked up the so called 'White paper' which is how they describe research papers published on their website, so presumably not peer reviewed or submitted to a medical or scientific journal. Stress and Recovery Analysis Method Based on 24-hour Heart Rate Variability –...

I have been considering doing so with mine. It would require adapting, and I've had too much else on my plate to do anything about it. I hope the organisations whose responses were rejected by the JNNP will submit them as responses to the BMJ article.

Does it explain how it measures stress?

Can this be raised in the responses to the government consultation?

It seems odd to wear the measuring device on the wrist when investigating details of walking, gait etc. Surely better worn on the leg.

I wouldn't push anyone to use apps if it didn't suit them. Taking photos if affected by diet and having visible symptoms is a great idea.

Symptom monitoring is becoming easier for those able to use smart phones with apps like Visible and the Solve you+me app which I think is still only available in the US. One area that I find hard to monitor is cognitive function/fatiguability/activity. If the makers of an app really understand...

The patient information sheet invites adults over 18 in the UK with an ME/CFS diagnosis to take part. It's dated a year ago, does anyone know if it's still running?

I did it too. I think it's good for alerting clinicians to the fact that some people with ME/CFS get so sick they need help with feeding including tube feeding etc, and alerting them not to make false assumptions such as anorexia or needing psychotherapy. It also takes the patient several years...

I think this is an important area for therapists to learn about. If I understand Jo Hunt's purpose in this abstract, it is to help therapists question the approach they have been taught to take in providing psychological therapy for people with 'MUS' which I take it includes ME. The PACE CBT...

Thank you Jo Hunt. Your blog posts are clear and provide a useful addition to understanding the historical background. It feels odd talking about history, as many of the same people are still fighting for their theories today. They have gained in eminence and power, but not in evidence to...

Unpublished Here's what I submitted: On power and paradigms, a response to "Anomalies in the review process and interpretation of the evidence in the NICE guideline for chronic fatigue syndrome and myalgic encephalomyelitis" The 51 signatories (White et al) of this critique of the 2021 NICE...