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  1. Trish

    Psychomotor Vigilance Test - discussion and testing

    Just tried it on my phone: average 1068 over 23 attempts. Not only did it not register a few times so I needed to touch the screen again, but it also more or less doubled the time from when I touched to when it registered. You can see it counting off in milliseconds, so it was obvious. I think...
  2. Trish

    Psychomotor Vigilance Test - discussion and testing

    I was doing it with a mouse, not a touchscreen. I guess that makes a difference. I'll try it sometime with a touchscreen to see if it works for me.
  3. Trish

    Psychomotor Vigilance Test - discussion and testing

    I thought about adding a poll, but it's hard to allow on a single list of options for all the possible variations in different factors like time of day, severity level, whether in PEM or not, and scores on the test. So let's just each do our own record keeping if we're interested, and post here...
  4. Trish

    Bio-signals Collecting System for Fatigue Level Classification, 2023, Younggun Lee et al

    Some posts have been moved to: Psychomotor Vigilance Test - discussion and testing
  5. Trish

    Psychomotor Vigilance Test - discussion and testing

    Result today: Average response time 459 msec over 26 attempts. Test taken about an hour after having a shower with hair washing, which exhausts me.
  6. Trish

    A qualitative longitudinal study of a health psychological group intervention for patients with ME/CFS, 2023, Keurulainen et al

    Given that the aim of the therapy is to help people adjust to their illness, learn to pace better etc, not to increase activity, I don't think it needs to include actigraphy. That would give a false view to the participants and incentive to the therapists to get them to try to do a bit more to...
  7. Trish

    Preprint Prevalence of long-term symptoms varies by using different post-COVID-19 definitions in positively & negatively tested adults:PRIME study, 2023, Pagen

    Neither my daughter or I have had covid because we're still isolating apart from occasional visits from a couple of family members who test before they come. I suspect quite a lot of uninfected are similar. The problem is we already have symptoms that overlap with long covid, so we're useless as...
  8. Trish

    Well-known, famous people with ME/CFS (public thread)

    So true, and harmful to others, if only they knew. Yes, in this case. However there are limits to my sympathy when it turns into active campaigning and denigration of others, think Live Landmark, Paul Garner...
  9. Trish

    A qualitative longitudinal study of a health psychological group intervention for patients with ME/CFS, 2023, Keurulainen et al

    Study in Finland involved a group of patients in planning in advance. I was concerned to see words like goals and rehabilitation, but it seems like goals were things like learning to pace better, and methods for relaxing, and using peer support, which is fine. There's all the CBT stuff...
  10. Trish

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    It works fine for me. I just go to the top of the article where there are headings: Article, Related content, Metrics, Responses. I switched easily between them. Edit: The Article is the paywalled one by Elisabeth Mahase in BMJ, not the one by White et al in JNNP, which last time I looked had...
  11. Trish

    Preprint The predictive role of pain catastrophising following genicular arterial embolisation for the treatment of mild and moderate knee OA, 2023, Harrison+

    Does this indicate that the diagnosis of so called pain catastrophising is actually finding people who are in greater pain and therefore should be expected to find it harder to cope with? Is 'catastrophising' a false, patient blaming concept that is actually detecting the clinician not taking...
  12. Trish

    Liquid sugar hit

    If sugary drinks are too hard to organise you could drink water and eat something high in sugar like a banana, grapes or raisins. Another thing to consider is how long you need the effect to last. Sugar in some form would give a quick lift in blood sugar then it drops quickly. Maybe have...
  13. Trish

    Liquid sugar hit

    You can also get lidded cups with spouts designed for elderly, disabled, etc. I even thought of using a baby's bottle.
  14. Trish

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    No, I don't think so. I just got on the screen after I'd submitted saying it had been received etc. Probably should have screenshot it.
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