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I keep by my bed a plastic mug with 2 handles and a lid with a hole for a straw. The lid pulls off and presses back on, which I can manage. I also have a litre bottle of water for refilling it. I also have some rehydration tablets so if I'm feeling I need some salts and glucose I can drop one...

Posts moved from: Bio-signals Collecting System for Fatigue Level Classification, 2023, Younggun Lee et al I've just tried it. This is what it said: Test Duration= 120 seconds Number of false starts= 0 Average response time= 367 msec over 26 attempts. Your results show that your alertness...

A post has been moved to: USA: National Institutes of Health (NIH) intramural ME/CFS study

For posts about the NIH announcement of clinical trials for Long COVID under the RECOVER program, go to this thread: USA: The RECOVER Initiative - Long Covid research

The above post has been copied and further posts about the clinical trials being run under the RECOVER program have been moved to USA: The RECOVER Initiative - Long Covid research

I've added breaks to the quoted sections below to make them easier to read I find this quite an exciting development. I don't know how effective and valid the measures of fatigue are, but this is the first time I've seen attempts to find objective measures of fatigue. I do recognise this is...

I don't understand why psychologists are allowed to do this sort of stuff as PhD's. It's so clear from that abstract that the writer doesn't have a clue what ME/CFS is, or what they are doing or why. It feels like they are doing a parody of science.

That seems to be correct. And it's worse than just another Cochrane type review, in that they seem to be openly using the Oxford criteria, ie only fatigue needed as a symptom, so won't need to downgrade trials which used Oxford criteria for indirectness, and they are using fatigue questionnaires...

Yes, thanks for sending in a response, @rvallee. I hope they publish all the responses.

One of the worst I've seen. He clearly hasn't a clue. The author is a psychologist. His only references are another crappy health site and the outdated Cochrane exercise review. You can leave a response but it requires your name and email address.

The journal should give equal prominence to NICE's response as the original article had.

The terms and conditions for Rapid responses. I have bolded a few relevant parts: https://www.bmj.com/company/journals-terms-and-conditions-for-rapid-responses/

Trying to get my head around all the Cochrane reviews for CFS, I think we now know the following: Exercise reviews: 1A. Cochrane review Exercise for CFS, published 2014, updated several times, by Larun et al is still standing. 1B. New review with Hilda's patient advisory group and review team...

The criteria they say they are going to use for CFS are all about fatigue, in other words, although they mention PEM at the beginning of the paragraph, it doesn't appear in the criteria. So a sneaky reintroduction of Oxford criteria? And the primary outcome, unsurprisingly is fatigue...

I think the key here is that this is not a clinical trial or longitudinal study where the effect of increasing or decreasing exercise can be deduced. It is a one time study of symptoms and activity levels. So it's really the old correlation is not causation problem, with the direction of...

This is the expanded disability status scale https://mstrust.org.uk/a-z/expanded-disability-status-scale-edss EDSS steps 1.0 to 4.5 refer to people with MS who are able to walk without any aid and is based on measures of impairment in eight functional systems (FS): pyramidal – muscle...

There is the AI in Medicine thread for posts specific to that topic. Artificial intelligence in medicine

The article is mainly a copy of a now deleted blog post by Coyne from 2016 It's his analysis of what's wrong with this published research: Schröder A, Rehfeld E, Ørnbøl E, Sharpe M, Licht RW, Fink P. (2012). Cognitive–behavioural group treatment for a range of functional somatic syndromes...

https://jimcoyneakacoyneoftherealm.substack.com/p/danish-rct-of-cognitive-behavior? Danish RCT of Cognitive Behavior Therapy for Whatever Bothers Your Physician About You More at link

This looks to me like a well run pilot study. I hope if bigger studies are done they will also do before and after microbiome studies to find out whether there were any lasting changes in microbiome in the patients.