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  1. Rain

    Covid-19 vaccination experiences

    Only Pfizer/Moderna in my area. Did not ask if he had noticed any difference between the two. (I’m guessing most of his patients got Pfizer as that was the most available one around the time my area started vaccinating high risk.)
  2. Rain

    Covid-19 vaccination experiences

    I wondered the same and had a close one ask their Rheumatologist. The answer was a lot of new skin reactions amongst his patients post vaccine.
  3. Rain

    Covid-19 vaccination experiences

    Has anyone had 2 Pfizer (with negative experience) and then Moderna as a third dose? Any difference in reaction? (I think I’m allowed to switch between the two in my area, but that might not be the case everywhere.)
  4. Rain

    Lightning Process - discussion thread

    What Industry a company is registered as is public info in Norway. Here the most profiled LP coach. Attached Google translate of the central parts. (Bonus info: education/training could be exempt VAT in Norway. Alternative treatments is 25% VAT.)
  5. Rain

    News from Scandinavia

    Thank you @Kalliope … :banghead:
  6. Rain

    News from Scandinavia

    @Kalliope do you happen to know what the mentioned pilot project at St Olav is?
  7. Rain

    Anybody had any improvement of pain symptoms from HRT?

    Please consult someone who really knows HRT. There is so much misinformation out there, both amongst patients and doc’s. A lot of it because modern body identical hormones are something quite different from earlier types of medications. Edit: I have had two gyno’s and one endo (the latter an...
  8. Rain

    Open Medicine Foundation (OMF)

    Disclaimer: I don’t know if she is talking on behalf of OMF here or only as a caretaker. I am severe myself, have been for years. And I know how big a difference it feels for me and my closest one to cheer for some more life quality. But I have always felt that it is 100% correct for scales not...
  9. Rain

    A map of metabolic phenotypes in patients with myalgic encephalomyelitis/chronic fatigue syndrome, 2021, Fluge, Mella et al

    «Our comprehensive evaluation of possible cofounders such as sex, BMI, age, diet, or medication did not indicate that these were main drivers of the ME/CFS phenotypes, but they may contribute to individual variation »
  10. Rain

    Well-known, famous people with Covid-19 and Long Covid

    I have never heard of the band Offspring before. But saw this comment under the BBC tweet about this.
  11. Rain

    Covid-19 vaccination experiences

    It took about 10 weeks from the second Pfizer dose for me to get back to baseline. My reaction seems to be less related to ME-symptoms, more of a flare of an (other) autoimmune diagnosis. It has been very hard, but I said in advance that anything other than a permanent worsening would be worth...
  12. Rain

    Pathomechanisms and possible interventions in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS),2021,Fluge,Mella,Tronstad

    They might just want to be able to document that they have never said that a single treatment should be assumed to help “every person with ME”. Preparing for the CBT-gangs arguments against future medicine testing on sub groups? I doubt researchers on any other disease ever have to think of such...
  13. Rain

    Covid-19 vaccination experiences

    You’ll normally need to click on the text to se the full tweet thread. This is where this one started.
  14. Rain

    Lightning Process study in Norway - Given Ethics Approval February 2022

    This a seems more like a distraction manouver from prof. G? I fear that the strategy is to just stir up old discussions in order to air out some frustration from the patient group so they can point at “activist patients” again?
  15. Rain

    Lightning Process study in Norway - Given Ethics Approval February 2022

    A Research Institution willing to put their reputation at risk by going against an Ethics Committee that they know has the final word… Interesting.
  16. Rain

    Lightning Process study in Norway - Given Ethics Approval February 2022

    :whistle: Please don’t give her any ideas on workarounds for the next application :whistle:
  17. Rain

    Covid-19 vaccines and vaccinations

    I am planning to think of my healthy friends and family as (most likely) not carriers of the virus after 2 mrna doses. I don’t trust my vaccination alone.
  18. Rain

    Patent: Method for the treatment of CFS using an inhibitory or cytotoxic agent against plasma cells, 2021, Fluge, Mella

    https://www.s4me.info/threads/human-leukocyte-antigen-alleles-associated-with-myalgic-encephalomyelitis-chronic-fatigue-syndrome-me-cfs-fluge-mella-et-al-2020.14329/
  19. Rain

    Patent: Method for the treatment of CFS using an inhibitory or cytotoxic agent against plasma cells, 2021, Fluge, Mella

    I’m pretty sure you are on to something here. Hasn’t Fluge hinted towards narrowing the inclusion criteria several times lately?
  20. Rain

    Covid-19 vaccination experiences

    2 weeks since first Pfizer dose. 3-4 days with classic symptoms like arm pain, extra fatigue, headache, chills, sore lymph nodes. Insomnia the first night. Neurological symptoms + brain fog was better for a few days. Still present: lowered blood pressure. Bloated with abdominal pain. Increased...
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