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  1. mango

    Big news from Sweden: Fatigue diagnosis to be disappeared

    Another opinion piece in one of Sweden's largest newspaper, framing ED as a cultural illness potentially caused by toxic positivity. Varför är alla moderna människor så sjukt trötta? https://www.dn.se/kultur/sandra-stiskalo-varfor-ar-alla-moderna-manniskor-sa-sjukt-trotta/
  2. mango

    Big news from Sweden: Fatigue diagnosis to be disappeared

    I'm really not trying to make a scientific argument about the recoveries or the treatments. In my reply to you I was only trying to convey the difference between ED and ME in Sweden on a very human everyday level, from my perspective. I was only trying to answer your question as I understood it...
  3. mango

    Big news from Sweden: Fatigue diagnosis to be disappeared

    Another main point I'm hoping to get across in this thread is that by disappearing ED as a diagnosis and declaring that exhaustion isn't an illness, they are kicking ED out of medicine/psychiatry and making it a political issue instead.
  4. mango

    Big news from Sweden: Fatigue diagnosis to be disappeared

    It is what it is. I wouldn't wish on anyone to be treated as appallingly as pwME are, so no.
  5. mango

    Big news from Sweden: Fatigue diagnosis to be disappeared

    I'm afraid I don't have the time to look up all the links for you, sorry. You can find them in exactly the same way as you would find scientific ME studies online. Same keywords as I mentioned earlier: exhaustion disorder, utmattningssyndrom, utmattningsdepression, utbrändhet.
  6. mango

    Big news from Sweden: Fatigue diagnosis to be disappeared

    I would sum up the main difference between ED and ME in Sweden like this: everybody acts as if ED is real and ME is not.
  7. mango

    Big news from Sweden: Fatigue diagnosis to be disappeared

    ED also has researchers working on it, including big studies with long term follow-ups. They have specialist clinics and patient organisations and support networks. They have access to support groups through the healthcare system. They have guidelines for insurance medicine, and clinical...
  8. mango

    Big news from Sweden: Fatigue diagnosis to be disappeared

    January 2028 is the date when the ICD system will be officially updated in Sweden. As far as I can tell there is no plan for how this disappearing will happen between now and then (or beyond that), or what it will look like in healthcare settings or in the social insurance contexts etc. We just...
  9. mango

    Big news from Sweden: Fatigue diagnosis to be disappeared

    I'm sorry for being blunt, but this is very naive and sadly I think you're wrong. They (Lindsäter et al, the National Board of Health and Welfare, and so on) are literally lumping ED and ME as if they are the same thing, "tiredness". Again, I urge you to look at the new Swedish clinical...
  10. mango

    Big news from Sweden: Fatigue diagnosis to be disappeared

    Let's not make any hasty assumptions, please. It doesn't seem to be that simple. If you look at the discussions in relation to the material I've posted so far, you'll see that problems are already cropping up. I'd imagine the biggest problem probably is what will happen to pwED when doctors no...
  11. mango

    Big news from Sweden: Fatigue diagnosis to be disappeared

    That's fine. I don't see that as an issue at all, because I haven't seen anyone trying to defend ME by defending ED. So far I actually haven't come across anyone actually trying to defend ED at all, except for some short comments by a few doctos in a couple of news articles. All the critical...
  12. mango

    Big news from Sweden: Fatigue diagnosis to be disappeared

    To be honest, I'm getting the impression that many of you are completely missing the actual point, what this is really about. It's not actually about the diagnosis ED as such. It's much much bigger than that. Don't get lost in the details, but look at the bigger picture, the overall narrative...
  13. mango

    Big news from Sweden: Fatigue diagnosis to be disappeared

    They are not even framing it as "fatigue" but as "tiredness".
  14. mango

    Big news from Sweden: Fatigue diagnosis to be disappeared

    No, sorry I unable to do that because it would be way too much work. You can search for scientific articles on "exhaustion disorder", and the Swedish term "utmattningssyndrom" as well as the historical terms "utmattningsdepression" and "utbrändhet". It's been an active field of research for...
  15. mango

    Big news from Sweden: Fatigue diagnosis to be disappeared

    Only exhaustion disorder is actually much more specific in practice (diagnosis, treatments, sick leave, social insurance applications, social acceptance and social support etc) than any of the other "fatigue/tiredness" alternative concepts are. These linked articles and the discourse happening...
  16. mango

    Big news from Sweden: Fatigue diagnosis to be disappeared

    The main thing I'm left with after reading, are the many hints to the conceptual model suggesting that some illnesses and diseases aren't really medical issues at all but just "difficult but normal life experiences" that everyone goes though. Implying that sick leave and medical treatments isn't...
  17. mango

    Big news from Sweden: Fatigue diagnosis to be disappeared

    Opinion piece today in one of the biggest Swedish newspapers/websites. It's currently at the top of the "most read" page. (Mentions neurasthenia and cultural illnesses, but not ME.) Diagnosen försvinner – men alla utmattade då...
  18. mango

    News from Scandinavia

    Be careful what you wish for, RME... :grumpy::grumpy::grumpy: You insisted on clinical guidelines, and you got them -- only they are arguably way worse than not having any guidelines at all. And still you want to keep on pushing in the same direction? Unbelievable :wtf::grumpy: Very very...
  19. mango

    Big news from Sweden: Fatigue diagnosis to be disappeared

    Därför slopas diagnosen utmattningssyndrom – 7 frågor och svar https://www.hd.se/2025-03-26/darfor-slopas-diagnosen-utmattningssyndrom-7-fragor-och-svar/
  20. mango

    News from Scandinavia

    There are a couple of articles on exhaustion disorder (burnout) in the news today. They do frame ME and post-covid as "cultural illnesses". Experterna oeniga när diagnos för utmattning slopas https://www.sydsvenskan.se/2025-03-26/experterna-oeniga-nar-diagnos-for-utmattning-slopas/ More about...
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