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  1. mango

    Long Covid in the media and social media 2022

    Swedish columnist Kjöller is back again, speculating about "cultural illnesses", social contagion and mass hysteria. Lots of people in the comments are praising her for being "so brave", "for having the courage" to write about this :grumpy: (ME is not mentioned, this time.) Hanne Kjöller: Samma...
  2. mango

    Dr Björn Bragée and the Bragée ME-center in Stockholm, Sweden

    Moved from the News from Scandinavia thread (This isn't news, but I wasn't sure where else to put it. Sorry. Felt important to document.) This is from a post by Dr Björn Bragée of Bragée ME-center in Stockholm, Sweden. It was published in March 2021, in a public Facebook group on precision...
  3. mango

    GERD, acid reflux, heartburn and hiatus hernia

    Sounds like milk (substitute) powder? Powdered, dried milk like for example Nido by Nestlé. ETA: Nido has 36,5g carbohydrates/sugars per 100g. 130g milk powder + 900ml water = 1 liter reconstituted milk.
  4. mango

    Walking stick or rollator?

    I use a walking cane sometimes, and I do find that it helps :) Mine is a HurryCane: tri-foot, foldable, freestanding, all-terrain, pivoting, with a shock absorbing handle. I'm very happy with it, but I haven't tried any other canes or a rollator so I have nothing to compare it to. I think it...
  5. mango

    News from Scandinavia

    Robin Söderling tar timeout: ”Hälsoskäl” https://www.dn.se/sport/robin-soderling-tar-timeout-halsoskal/
  6. mango

    Long Covid in the media and social media 2022

    News article, Sweden: Barn med postcovid blir friska snabbare än vuxna https://www.dn.se/sverige/barn-med-postcovid-blir-friska-snabbare-an-vuxna/
  7. mango

    News from Scandinavia

    (Not ME) This thesis and the studies it is based on are getting headlines in Sweden today: Cancerpatienter smyger med alternativbehandling https://tt.omni.se/cancerpatienter-smyger-med-alternativbehandling/a/9KPz0d Cam = complementary and alternative medicine. An interview with the...
  8. mango

    Long Covid in the media and social media 2022

    The long covid specialist clinic in Uppsala, Sweden, is likely to be closed down. Uppsalas postcovid-mottagning kan läggas ned – trots långa väntetider https://amp.svt.se/nyheter/lokalt/uppsala/framtiden-ar-osaker-for-uppsalas-postcovid-mottagning Cilia lider av postcovid – oroad inför...
  9. mango

    Infections and autoimmunity: risk factors for [CFS] and subsequent B cell lymphoma and chronic lymphocytic leukemia development (planned study) Rosén

    Funding announcement by the Swedish Cancer Society: Infections and autoimmunity: risk factors for chronic fatigue syndrome and subsequent B cell lymphoma and chronic lymphocytic leukemia development Anders Rosén Linköping University, Sweden 2022 SEK 1 600 000 Diagnosis: lymphoma Research...
  10. mango

    News from Scandinavia

    Tre frågor om: ME/CFS https://www.svt.se/nyheter/lokalt/vastmanland/tre-fragor-om-me-cfs
  11. mango

    News from Scandinavia

    Anns dotter är svårt sjuk i ME/CFS: ”En riktigt dålig dag kan hon inte prata” https://amp.svt.se/nyheter/lokalt/vastmanland/anns-dotter-ar-svart-sjuk-i-me-en-dalig-dag-kan-hon-inte-prata
  12. mango

    News From Jarred Younger / Neuroinflammation, Pain, and Fatigue Laboratory at UAB, From Aug 2020

    Thank you so much for sharing your excellent notes, @Hutan! Much appreciated :hug::heart:
  13. mango

    News from Doctors with ME

    So many red flags... :( One thing (of many) that I find very off-putting about this is how DwME seem to be distancing themselves from other pwME by referring to everyone else as a group of "patients". They could have chosen to relate to Cassava7 as a fellow pwME or fellow activist/advocate, a...
  14. mango

    Swedish Central Ethics Review Board finds Macchiarini guilty of misconduct, requests retraction of 6

    "Swedish court finds Italian star surgeon guilty of ‘causing bodily harm’ A court in Sweden has found the scandal-hit Italian surgeon Paolo Macchiarini guilty of a serious crime causing bodily harm for one of three experimental operations implanting synthetic windpipes in patients."...
  15. mango

    Neurotoxic amyloidogenic peptides in the proteome of SARS-COV2: potential implications for neurological symptoms in COVID-19, 2022, Charnley et al

    Australian researchers find parallels between Alzheimer’s and long-COVID ‘brain fog’ https://www.smh.com.au/national/australian-researchers-find-parallels-between-alzheimer-s-and-long-covid-brain-fog-20220614-p5atnp.html
  16. mango

    News from Scandinavia

    The motion states: The report (betänkandet) by the Social Affairs Committee (Socialutskottet) states: The decision states: The same report recommended that the Parliament should say 'no' to a centre of excellence for post-covid (motion 2021/22:3697 and motion 2021/22:3809), and the...
  17. mango

    News from Scandinavia

    Excellent, as always! Thank you so much :hug::thumbup:
  18. mango

    News from Scandinavia

    Repeatedly rejected benefit claims is such a massive problem for pwME in Sweden, I cannot stress this enough. So many of us, myself included, have had our lives completely destroyed by them, including severe permanent deterioration from having to over-exert ourselves by appealing to the...
  19. mango

    News from Scandinavia

    More news on Radio Sweden (2 minutes, in Swedish) Ny rapport: Oftare avslag för fibromyalgi och kroniskt trötthetssyndrom https://sverigesradio.se/artikel/ny-rapport-oftare-avslag-for-fibromyalgi-och-kroniskt-trotthetssyndrom
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