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  1. mango

    News from Scandinavia

    The Swedish Social Insurance Agency (Försäkringskassan) has published a social insurance report on rejected sickness benefit claims (sjukpenning): Rejected sickness cash benefit claims – A register study of sickness insurance decisions on initial claims and claims after day 180 in the...
  2. mango

    Long Covid in the media and social media 2022

    The Swedish Covid Association has quote tweeted the thread, saying "Here are the answers to a lot you want to know about postcovid. @trishgreenhalgh is probably the doctor who has contributed most to the advancement of knowledge in Europe. Follow her." o_O
  3. mango

    News from Scandinavia

    Paywalled articles in a Swedish local paper: Diagnosen fick Anna, 33, att ge upp sina drömmar – nu har den största besannats https://www.falukuriren.se/2022-05-30/diagnosen-fick-anna-33-att-ge-upp-sina-drommar--nu-har-den-storsta-besannats Christina kämpar för sjukdomen som inte syns: ”Många...
  4. mango

    ME researcher Jonas Bergquist - interviews, talks

    From the News in Scandinavia thread (includes auto-translated quotes):
  5. mango

    News from Scandinavia

    Article in a Swedish local paper: Forskare: Postcovid och ME kan vara samma sjukdom https://unt.se/bli-prenumerant/artikel/rx5v28kj
  6. mango

    Exhaustion Disorder: A Scoping Review of Research on a Recently Introduced Stress-Related Diagnosis, 2022, Lindsäter et al

    I forgot to add, another reason that pwME might wrongly have an ED diagnosis on paper is that many doctors know that the Swedish Social Insurance Agency very often denies the fact that ME can be very disabling and significantly affect a person's ability to work. If it says ED instead of ME on...
  7. mango

    Exhaustion Disorder: A Scoping Review of Research on a Recently Introduced Stress-Related Diagnosis, 2022, Lindsäter et al

    Those of you who aren't familiar with Gustav Nilsonne's work, I'd encourage you to have a look, especially at the meta-science side of things. I think you might be pleasantly surprised. https://twitter.com/GustavNilsonne "My research in meta-science concerns transparency, reproducibility and...
  8. mango

    Exhaustion Disorder: A Scoping Review of Research on a Recently Introduced Stress-Related Diagnosis, 2022, Lindsäter et al

    Lots of long haulers have probably gotten misdiagnosed with exhaustion disorder already. Lots of us pwME have been misdiagnosed with exhaustion disorder, especially in the first 6 months after onset. This is a well-known fact. One common reason is that doctors very often don't know enough about...
  9. mango

    Exhaustion Disorder: A Scoping Review of Research on a Recently Introduced Stress-Related Diagnosis, 2022, Lindsäter et al

    Short news article in a web magazine created by journalism students at Stockholm University, Sweden. Dags att utreda utmattningssyndrom https://sites.jmk.su.se/laget/dags-att-utreda-utmattningssyndrom/6180
  10. mango

    Exhaustion Disorder: A Scoping Review of Research on a Recently Introduced Stress-Related Diagnosis, 2022, Lindsäter et al

    Another opinion piece in the Swedish newspaper DN, by the authors of the research article. DN Debatt Repliker. ”Behandling av utmattade måste bygga på vad som hjälper” https://www.dn.se/debatt/behandling-av-utmattade-maste-bygga-pa-vad-som-hjalper/ ("Healthcare choice" = Vårdval Stockholm is...
  11. mango

    News from Scandinavia

    Paywalled article in a Swedish local paper: Maria, 43, lider av svåra sjukdomen: ”Som om någon satt dimmer på livet” https://www.smt.se/2022-05-23/maria-43-lider-av-svara-sjukdomen-som-om-nagon-satt-dimmer-pa-livet
  12. mango

    News from Scandinavia

    Paywalled articles in a Swedish local paper: Fredrik älskar Cecilia – men hatar hennes sjukdom https://unt.se/bli-prenumerant/artikel/lwgvgo7r "Sjukvården har gjort ME-patienter sjukare" https://unt.se/bli-prenumerant/artikel/r42xq88l
  13. mango

    Signs of Intracranial Hypertension, Hypermobility and Craniocervical Obstructions in patients with ME/CFS (Pre-print 2019/published 2020) Bragée et al

    There's one more thing I'd like to add. When Bertilson was asked about how many people there are with ME [in Sweden], he replied: "What we can say based on research is that there are at least as many as there are people with rheumatoid arthritis, which is between 50,000 and 100,000 but it's...
  14. mango

    Signs of Intracranial Hypertension, Hypermobility and Craniocervical Obstructions in patients with ME/CFS (Pre-print 2019/published 2020) Bragée et al

    Can you please explain what you mean, expand on this? Are you implying that the Bragée research has been silenced by someone, and if so by whom? How? As far as I know, nobody has tried to "warn off" or "take down" the Bragée clinic's research. The Bragées are actually known to be the kind of...
  15. mango

    Signs of Intracranial Hypertension, Hypermobility and Craniocervical Obstructions in patients with ME/CFS (Pre-print 2019/published 2020) Bragée et al

    I don't know. I don't think so? Their head of research Bertilson was interviewed on TV a few weeks ago, but he didn't mention anything new or planned. They haven't published any related research news or updates on the clinic's social media, and there has been no talk about it among their...
  16. mango

    USA: Mount Sinai PACS clinic and Dr David Putrino

    According to this tweet/thread, the goal is to challenge the ANS in order to change its behaviour.
  17. mango

    Exhaustion Disorder: A Scoping Review of Research on a Recently Introduced Stress-Related Diagnosis, 2022, Lindsäter et al

    Karolinska Institutet also has this article from 2020 about Lindsäter's thesis on CBT for exhaustion disorder (12 weeks, online). KBT för utmattningssyndrom ger effektiv symtomlindring https://nyheter.ki.se/kbt-for-utmattningssyndrom-ger-effektiv-symtomlindring Lindsäter' thesis with links to...
  18. mango

    Exhaustion Disorder: A Scoping Review of Research on a Recently Introduced Stress-Related Diagnosis, 2022, Lindsäter et al

    P.S. The main reason I keep posting about ED here on the forum is that in countries other than Sweden, many (or most?) pwED are probably being lumped in under the CFS umbrella and/or MUS. Also because it's such a common misdiagnosis for pwME, and the currently recommended treatment for ED is...
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