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  1. mango

    USA: National Institutes of Health (NIH) intramural ME/CFS study

    Maybe he could ask someone else to help then, instead of only Wallitt? Personally, I highly doubt that anything analysed or written by someone with such strong prejudices (as the ones Wallitt has expressed) would be reliable in this context. :grumpy:
  2. mango

    Closed Sweden 2022: The REDBANK Study - Amelieklinikin (was RED Clinic) Jonas Axelsson

    A project description in English, including methods etc, is available to download through the link below. The name of the file is "Grundansökan-Bilaga4-Scientific program (1).pdf" https://www.dropbox.com/sh/jywkzl96xvhlyex/AACcILy6k5sQ0Hsai8FWz0wla?dl=0
  3. mango

    Closed Sweden 2022: The REDBANK Study - Amelieklinikin (was RED Clinic) Jonas Axelsson

    An update on this. The Swedish Ethical Review Authority has not received any new applications from Ameliekliniken or Jonas Axelsson.
  4. mango

    What does it mean when an ME/CFS patient says they "got long covid" after catching SARS‑CoV‑2 (COVID)?

    Several of my pwME friends have gotten long covid. I've been reading lots of posts in the Swedish groups on social media too, both ME, long covid and POTS groups. As far as I understand it, they describe a kind of symptom exacerbation and deterioration that is different to what they have ever...
  5. mango

    Closed Sweden 2022: The REDBANK Study - Amelieklinikin (was RED Clinic) Jonas Axelsson

    Here's a link to the full original ethical approval application from August 2020, in Swedish (pdf, 25 pages, 23MB). https://www.dropbox.com/s/19h3qmqqmsvzegz/Grundans%C3%B6kan-Ans%C3%B6kanME.pdf?dl=0 (I haven't checked recently if there are any new or updated applications related to this study...
  6. mango

    Closed Sweden 2022: The REDBANK Study - Amelieklinikin (was RED Clinic) Jonas Axelsson

    Research project title: Vävnadsbankning och karakterisering av biologiskt material ifrån patienter med retroviralt associerade sjukdomar (RED) In English, something like "Tissue banking and characterization of biological material from patients with retrovirally associated diseases (RED)" Some...
  7. mango

    Closed Sweden 2022: The REDBANK Study - Amelieklinikin (was RED Clinic) Jonas Axelsson

    A news article from 2020 Klinik forskade om långtidscovid utan tillstånd https://www.svt.se/nyheter/vetenskap/klinik-forskade-om-langtidscovid-utan-tillstand
  8. mango

    Closed Sweden 2022: The REDBANK Study - Amelieklinikin (was RED Clinic) Jonas Axelsson

    Recovered ME-patient Björn Eklund recently mentioned Axelsson's research in a blog post: https://bjorneklund.se/utan-jonas-axelsson-hade-jag-inte-kunnat-gora-den-har-vandringen/
  9. mango

    News from Scandinavia

    Opinion piece (in English). ME is not mentioned. What my burnout taught me about Sweden’s exhaustion epidemic “Hitting the wall” is a well-known and widespread phenomenon in Sweden, where thousands are forced to take long-term sick leave because of clinical exhaustion. David Crouch, who hit...
  10. mango

    ME researcher Jonas Bergquist - interviews, talks

    (Post copied from the News from Scandinavia thread.) Jonas Bergquist on Swedish TV earlier this week: Ny forskning: Snart kan det finnas ett test som visar om du har ME https://www.tv4.se/artikel/6srgEVVzx5ruSB8glokGoa/ny-forskning-snart-kan-det-finnas-ett-test-som-visar-om-du-har-me...
  11. mango

    News from Scandinavia

    OMF has scheduled a YouTube video to premiere on May 3, 2022. "Dr. Jonas Bergquist updates on ME/CFS Research Progress! May Momentum Tuesdays 2022 Jonas Bergquist, MD, PhD, is OMF's Chief Medical Officer & Director of the Uppsala ME/CFS Collaborative Research Center (CRC). Today he shares...
  12. mango

    ME researcher Jonas Bergquist - interviews, talks

    Post copied from the News from Scandinavia thread. OMF has scheduled a YouTube video to premiere on May 3, 2022. "Dr. Jonas Bergquist updates on ME/CFS Research Progress! May Momentum Tuesdays 2022 Jonas Bergquist, MD, PhD, is OMF's Chief Medical Officer & Director of the Uppsala ME/CFS...
  13. mango

    Open Sweden: ME/CFS lactate, glucose and hypoxanthine

    According to the original research plan the exertion bit was for the participants to read something, eat something and take a 5-minute walk. But it seems they changed it to reading something, doing some sort of social activity/test(?) and cycling on a stationary bike without resistance.
  14. mango

    Open Sweden: ME/CFS lactate, glucose and hypoxanthine

    I doubt it. I've never heard of it. I tried googling a literal translation of the expression, but I got no results at all in Swedish.
  15. mango

    Covid-19 vaccines and vaccinations

    A Swedish humour/documentary show on public service TV, 18 minutes long. Skav: Soten och boten https://www.svtplay.se/video/35061351/skav/skav-soten-och-boten-soten-och-boten
  16. mango

    News from Scandinavia

    :emoji_ghost::emoji_joy: [feeling extremely invisible] ETA: Yes, FMMM1, I speak Swedish.
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