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I am sorry to hear about your friend's akathisia, a truly horrible and common side effect. I completely agree that the current medical establishment is unaccountable and doctors are permitted to basically terrorise patients. But there is genuine mental illness and there are many instances where...

What about the patients whose agency has been diminished or withdrawn by psychiatric illness? How is the system going to help somebody without "systematic use of force" who is in a psychotic state? Or manic? Or has delirium? Dementia? I am not talking about misdiagnoses and abuses/excesses of...

There's nothing worse than mentally ill people writing long essays to convince themselves and other mentally ill people that mental illness isn't real and they can all stop taking their meds.

The mere notion that CBT could or should be used in a disorder as serious and impervious to rational argumentation as psychosis is pretty disturbing IMO and what is even more disturbing is that ethics committees nowadays are permitting this sort of "research". Funny how so many psych trials are...

Ranitidine did nothing for me but cimetidine (another H2 antagonist) had a noticeable positive effect. I know two other people with CFS who benefitted from cimetidine. Unfortunately, the effects wear off over time.

Unsurprising.

I'm surprised to see water aerobics recommended for ME/CFS. Personally, no activity makes me weaker and more orthostatically challenged than being in a bath, jacuzzi or swimming pool, presumably due to vasodilation and thus severe worsening of orthostatic intolerance, a very common and disabling...

Mine were low end of normal range, just under 300. GP of course dismissed it as “normal” but I was alarmed given how many symptoms of B12 deficiency I had so I began supplementing immediately.

Back when my ME was becoming moderate (later severe) and I was still trying to push myself to work not knowing WTF was going on, my legs were covered in bruises from bumping into things. I had near-constant ataxia and a feeling of disequilibrium. I fell outside several times, even ending up in...

Good point. Just shows the dangers of continuing use of CDC criteria. Neurological and GI symptoms are part and parcel of many people's presentations. IBS and food intolerances seem extremely common. Dysautonomia (which is a neurological symptom) seems almost universal.

No. It's an open access journal Scientific Reports which is part of the Nature publishing group but the bar for publication is drastically lower than in Nature itself.

Wow. CBT = theater of the absurd

I don't think there's any evidence of this. I think that the heart palpitations and other issues have nothing to do with the aetiology of regular-person heart disease like atherosclerosis.

The reply is reassuring.

Agreed. Lack of initiative/drive tends to travel with lack of pleasure/anhedonia (both underpinned by dopaminergic reward pathways), not necessarily low or depressed mood per se. In fact, mood can be normal or even elevated in such states.