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Just so that nobody misses the chance to attend: https://philevents.org/event/show/89434?ref=email

Yes, nobody is doubting that the symptoms, at least in a proportion. The problem is people who pretend that they can explain them, whether Sharpe or Rowe, when so far we don't have any clear idea how to for ME.

Dysautonomia is not a symptom, it is a suggested explanation for some symptoms. I am far from convinced that it is well grounded. Even if there are haemodynamic changes during OI as to whether they qualify as 'dysautonomia' is a moot point. In a sense POTS is a sign that the autonomic system is...

I don't remember the detail either but I think @MSEsperanza is right to question the helpfulness of Peter Rowe going on about cardiovascular abnormalities. Last time I considered this it seemed to me that the evidence for any specific cardiovascular cause of orthostatic intolerance was very...

Yeah well, if you are a health care worker you probably have other health care workers to advise you and may well have the gump to realise that the GP won't have a clue. And that sounds more like either than neither

Do the authors not realise that randomisation only occurs in trials, not in normal service treatment? So how can randomisation be deleterious to normal service treatment?

Yes, @Esther12 , there is no comparison, either in the medium or the message.

So why does a female, or male, academic go tweeting about their terribly important opinion in relation to some topical disease? As an academic it wouldn't cross my mind to tweet ny opinions. What makes TG think she is entitled to splurge her opinions all over everyone? This behaviour has nothing...

I often feel too old as well (being the same age) but we aren't too old. There is life in us yet. As Andy says, a huge amount has been achieved. Robert keeps telling me that I should write that book. It was going to about PACE and then it seemed it needed to be wider - about Cochrane and all...

If a person feels that in order to keep their ego in the limelight they need to Tweet about wearing masks then they can expect to get idiots replying. I think Greenhalgh needs to ask herself why it is so important for her to be tweeting such things.

So what is all his bullshit about autonomic responses and brains doing funny things about? I don't think the 'positive responses' to vaccines are a good argument, though. Same unreliable evidence as peddled by people like Garner and Vogt and so on. The biomedical model takes on board bias due...

Well Bethany Dawson did not misquote me but I am sorry to say the article as a whole is a damp squib! Finishes off with some nice CBT and exercise and treating the whole patient.

NICE includes several people, some of which I have a fairly clear idea of the psychology of. For some there is indeed a vested interest - coming from general practice, valuing the option of dumping patients elsewhere and not rocking boats; believing in curbing big Pharma but not necessarily nice...

I added some teasing.

I am not sure this is so much a problem with academia as a problem with VPWH (vocal people with hobbyhorses). That would include Paul Garner, Peter Gotzsche, Trish Greenhalgh, Clare Gerada, Paul Glasziou and a string of others. The key is that the vocal championing of some altruistic cause is in...

We tried that. Ernst does not seem to see much beyond his nose in this respect.

You can hear them double-thinking.

Ernst again completely misses the point that exercise and ACT are just as bogus as acupuncture.

I have reliable information that it is not. It is simply a matter of too much to respond to adequately.

Only if you are unable, like the author here, to acknowledge that there is uncertainty everywhere and diagnosis is merely a placeholder for understanding what is wrong and what it may bring in the future.