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Those clinical professionals who change their minds about BPS based only on their own experience can be unreliable allies, not just a certain Mr Garner, as they gradually get hooked in to some mind body guff or other and convince themselves that they are among the strong and stable ones who can...

This thread might be a useful source of publications. Simon Wessely Research & Related Quotes particularly posts 3 and 4 with quotes and references on cause and perpetuation

We should also be aware that this discussion has only been running for a couple of days. There may be other forum members who would like to make suggestions before the process is set up who haven't had a chance to join in yet. Let's take a few days to catch our breath.

It's great to see so much enthusiasm for this idea, and I don't want to discourage anyone, but before anyone races ahead with organisation and deciding who does what, I think if this is to be an official forum project producing materials that are published by the forum, the committee will need...

I think that is easily covered by saying someone who had PEM but now doesn't but still has some symptoms has ME/CFS that is in partial remission. My point is that someone who has other ME/CFS symptoms but has never had PEM as part of their symptoms does not fit ME/CFS diagnostic criteria, so by...

Right now in the UK asking, however nicely, for any special provision in hospital is a non starter. They are overflowing with acute infections on top of everything else. A friend's father in law who is very sick and unable to keep food down or walk without falling spent 36 hours on a chair in...

I think we need the initial couple of weeks forum wide discussion, even if it does slow things down. I could, for example, pick my favourite bugbear topic at the moment, defining PEM, gather a few people who agree with me, and spend hours refining a document, only to find wide disagreement when...

Only if they are done one at a time. We could run 2 or 3 in parallel with different writing groups. I don't think we should rush it.

We've already done that in one of our letters. They took no notice.

I agree that at some stage in each document we will need a small group to go to a private space to organise and polish a final version. I think it would be worth at least for a week or two at the start for each document doing a members only thread where anyone can join in and add ideas. The...

The look good, but give a very brief overview and don't cover everything on the list @Jonathan Edwards just posted.

That seems like an even bigger task, as most charities have a lot of resources accumulated over the years. We have reviewed some documents produced by charities when they have come up for discussion and provided them with our suggestions. I think the general view from charities is that they have...

This looks important: