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I’m sorry you’re being tormented by your vents. Yes, I understand the energy drain involved. I would not be able for any of that – it would never happen without someone else doing all the calls for me. Here’s the process we went through: 1. I emailed Rytons and an Account Manager wrote...

Might be of interest: https://www.s4me.info/threads/noise-reduction-acoustic-vents.37011/

Might be of interest: https://www.s4me.info/threads/noise-reduction-acoustic-vents.37011/

Might be of interest: https://www.s4me.info/threads/noise-reduction-acoustic-vents.37011/

Might be of interest to people on this thread: https://www.s4me.info/threads/noise-reduction-acoustic-vents.37011/

After a huge leak made it necessary, we did up the rooms I live in. I found “acoustic vents” and thought others with noise intolerance and ventilation holes in their external walls might be interested. Noise intolerance is a big issue for me, has been since day 1, and remained so even when...

Yeah there are other options too that would be much more affordable but just wouldn't have worked in our room/house. You can have a headboard hung on the wall. So you could have a bed with a regular headboard to support your most common position, and then a matching headboard on the wall for...

PS Oh and physios suggested a pillow under my knees (or between when on side) when I had low back issues.

You’re right to seek a physio’s advice. Hope you get someone good. My understanding is that it’s best if you can look at the TV/window/whatever you look at most head on, ie not on your side but on your back. And that changing your position is important eg being able to turn onto either side...

I think the only two I might have marked myself down on at that time would have been 52 (TV) and 54 (concentrate for 2 hrs). But whether or not I marked myself down would have depended on how well I was pacing. To put it another way, I might have scored better on this section when I stopped...

I like that they consulted patients so much. I think I will submit this form when next being assessed for social welfare. It's a pretty quick way of conveying inability to work at all. One of the things I would change is the gulf between 0 (I cannot do this) and 1 (I feel pants for at least 3...

Doctors have also been found to underestimate the pain of black people. https://www.aamc.org/news/how-we-fail-black-patients-pain

What a horrific thing for that person to say. Horrible that people with ME/CFS who aren't white face that kind of racism on top of all that comes with being ill. And demonstrates the harm that comes from these personality stereotypes that many clinicians like to peddle about people with ME/CFS.

You made me laugh out loud. For a while. Still smiling. Thanks for that.

Ooh, my always-positive-speckled-ANA just perked up. Might this be one for Fluge and Mella?

Yeah, that's where I'm coming from. I think GPs would be more likely to read it without the "excellent". They won't read it because patients think it's good, indeed, that will be off-putting to some/many. The ones who read it will read it because at a glance they can see that it's a decent...

Woo hoo! I think what you went with looks great, and you really made it tempting to look into it more. I'd probably have left out the "excellent", just because some will baulk at patients daring to judge the value of articles, but it really is pretty excellent isn't it? Hope someone was...

The key is to concentrate on the sky, apparently:

It's such a hope-evoking message, isn't it?

How about the first page of this paediatric primer on one side and judiciously chosen excerpts from it on the reverse? Frontiers | Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Diagnosis and Management in Young People: A Primer (frontiersin.org) Or the Clinical Diagnostic Worksheet within it?