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I’m not. The need to reduce or modify or ‘avoid’ certain activities is essential for people with ME/CFS whether they also have depression/anxiety or not; it’s not a ‘negative cognitive error’ and no therapist should be trying to fix it. It ain’t broke. I think it’s entirely natural to want to...

Agree, this is a big hole in the ME/CFS research. I have often found myself scouring papers for this and exasperated when the information just isn't there. Chu's paper that @Michiel Tack quoted above is helpful for pointing to relevant papers. It might be worth contacting Leonard Jason as his...

Yup. Some other tidbits that might be of interest, from the interview described above with Paddy Mallon, the Infectious Diseases Consultant: He defined long covid simply as “failure to recover from an initial covid infection.” He said that there were different groups within long covid...

I listened back to the programme. I don't know if others will be able to access it, but here's the info: https://www.newstalk.com/listen-back The Pat Kenny Show 12 May Starts at 02:04:20 with a woman who has long covid The bit I quote below is at about 02:22:00. Here's what was said...

Hm, I dislike the jump to FND as much as anyone, but I disagree. I read the JAMA article. They’re not saying that any symptoms following vaccination are conversion disorder. They’re saying that there are a bunch of adverse effects that we know about – the usual fever etc – and that these are...

I thought this blog post written by someone with both depression (pre-ME/CFS) and ME/CFS was interesting. After explaining how any exertion affects her ME/CFS, she then explains when she does and doesn't find exercise helpful regarding her depression: So for her, exercise is helpful before...

In the context of people who may have ME/CFS following SARS-CoV-2 infection infection, what I want is for clinicians to carefully distinguish, not between terms or explanatory models, but between effective and ineffective treatments, regardless of what they think causes my or anyone else’s...

This analysis of 196 covid-19 critical care admissions in England, Wales & N. Ireland was being discussed on the UK news yesterday. You can download it as a pdf from here (click on "report")...

How will age distribution in populations affect how covid-19 spreads and impacts different countries? If Italy's high death rate is due to its older population, then will countries with younger populations fare better, at least in terms of fatalities? Or will younger people spread it so...

Thought y’all might be interested in this analysis of Irish cases. Smaller numbers and earlier stage of the pandemic than some other European countries. Bit of context first: Population is approx. 5 million. Ireland had its first case confirmed 29th February. (Compare to UK end January.)...

You can download an Excel file with all of the publications on Covid-19 to date from the WHO website: https://www.who.int/emergencies/diseases/novel-coronavirus-2019/global-research-on-novel-coronavirus-2019-ncov Scroll down to "Download full database". You can then google the titles and...

Regarding age, I get the impression that plenty of people (not on S4ME, just generally) think “elderly” refers to something north of 80. Or at least 20 years older than themselves. It seems to me that decisions to implement measures like school closures, border closures etc and compliance with...

Thankfully all St Patrick's Day parades, nationwide, have now been cancelled in Ireland. That happened yesterday. So that's something. I found it interesting to hear this patient's account that their only symptom was fever. Not surprising if you've been scouring the literature, but I think...

Table 1 in this study from the New England Journal of Medicine shows data for patients with various co-morbidities including COPD (but not asthma). It does list diabetes, @Barry . https://www.nejm.org/doi/full/10.1056/NEJMoa2002032 The numbers are very small for COPD, in that there were only...

Agreed, those are two different things. I haven't yet come across any studies reporting how premorbid asthma or other respiratory illness affects outcome of Covid 19, though. You'd think you would see a difference between the more and less severe cases, with premorbid respiratory disease...

I hadn't heard diarrhoea mentioned as a symptom either, but this paper mentions reported by 39.6% of a sample of 140 patients in Wuhan, China. https://onlinelibrary.wiley.com/doi/full/10.1111/all.14238 They break it down further in table 2. Looks like 11-15.8% had diarrhoea, depending on...

I do and meant to include it! https://academic.oup.com/rheumatology/article/42/9/1050/1772059 It's Tench et al 2003 Fatigue in systemic lupus erythematosus: a randomized controlled trial of exercise I've put the link in my original post too.

In this trial of exercise in lupus co-authored by Peter White, they used three fatigue scales. https://academic.oup.com/rheumatology/article/42/9/1050/1772059 The Chalder Fatigue scores were the only ones to change significantly. Scores on the other two fatigue scales - the Fatigue Severity...

@Lucibee and I talked about particular problems with the Chalder Fatigue scale on a previous thread. We looked at NHS data from Collin & Crawley's 2017 paper and PACE data. #123 through 128 of this thread https://www.s4me.info/threads/a-general-thread-on-the-pace-trial.807/page-7#post-61308

I’m really pleased that Tomas and her team did this important piece of work. My impression, from hearing other people’s test results and how they got on with recommended supplementation and repeat test results, was that the test was probably not reliable. But I would have been very interested...