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Does anyone know if the results of the POMME Study have been published yet? CFS/ME | Centre for Academic Child Health | University of Bristol

Encephalitis Lethargica | Encephalitis International UK phone number.

From the couple of paragraphs I've read so far @Trish this looks spot on. I've been doing too much reading lately so don't have many words in me today, except to say the cummulative effect of pacing up cannot be under-stated, nor the inherent fluctuating nature of the illness which can, and is...

I remember when they first started looking at faecal transplants and my husband remarking that it would be typical of me to have an illness where this could end up being one of the treatments. :laugh: He passed away 10 years ago. I wonder how much research funding has gone to BPS research...

Looking through some documents I printed when I was first diagnosed I came across this paragraph under the heading on page 21, 'Good practice points' in the Occupational Aspects of the Management of Chronic Fatigue Syndrome: a National Guideline 2006: Good Practice Points Never come across...

This is impressive work and invaluable evidence.

Thanks for posting this. I didn't have a link to the parliament tv clip of the Debbie Abraham's question on Jodey Whiting suicide (2017) or Errol Graham starvation (2018). Parliamentlive.tv - House of Commons

Section 5.10 Agreed Actions of the Interim Delivery Plan under sub-heading attitudes and education stated this: From the results of the consultation on Attitudes and Education section, sub-heading Education and training: This is an example which was posted on another thread which is/has...

The DHSC Delivery Plan should be published BEFORE parts are IMPLEMENTED on the ground! WTF

Agreed. It's exactly that type of advice which could end up in a late diagnosis of cancer, endometriosis, all sorts. Just because we are diagnosed with CFS doesn't mean we don't have other illnesses.

:) Thanks for that clarification. I'll carry on reading then.

Here's a metaphor right back at them from The Four Principles of Biomedical Ethics — Healthcare Ethics and Law

I had to double check on central sensitisation. Found this video. Just keep telling the patient it's their maladaptive beliefs are the sole cause of their problems!

I've only just seen this thread and haven't read all the comments so apologies if this duplicates, but I was about to start going through some Cochrane reading material. My first question was also what the hell is a Living systematic review?? Reading the following from Cochrane, isn't this...

Noted.

Good point!

Thanks for this info @Chestnut tree That links Cochrane to the 2007 NICE Guideline. I'll read the practice guide over the next week or so.

Interesting. So like many professions such as human resources have the CIPD to keep them up to date, seeking professional current legal advice on a legal matter etc. The whole thing begins with the correct diagnosis and that depends on education and training and application, a root and branch...

Most nations have enshrined the principles of the 1948 Declaration of human rights, freedoms and responsibilities into their local laws. Is there a link to the Australian and New Zealand versions? ETA: Montgomery v. Lanarkshire Healthboard [2015] Supreme Court case is a common law case. It...

Can someone please clue me up on (with evidential links if possible) exactly who the target audience for a Cochrane Review is designed to be? Obviously researchers but who on the medical frontline treating patients would actually check up on them, or is it just policy makers and management...