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  1. InitialConditions

    Analysis of Gender Differences in HRV of Patients with [ME/CFS] Using Mobile-Health Technology, 2021, Capdevila et al

    I've just got a Polar H10. I hope to track HRV and see if the hype is justified.
  2. InitialConditions

    NICE ME/CFS draft guideline - publication dates and delays 2020

    I don't think we know what exactly the PEM 'issue' is i.e., what was said that prompted a reanalysis, and by who? I can't quite work out the most probable explaination. If this was BPSers, what must they have said? what are they arguing for with respect to actual changes to the evidence base...
  3. InitialConditions

    NICE ME/CFS draft guideline - publication dates and delays 2020

    I had missed that. He was a co-opted member, wasn't he.
  4. InitialConditions

    NICE ME/CFS draft guideline - publication dates and delays 2020

    I don't think this is worrying. This 'stepping-out' generally happens to at least one member at each meeting, due to conflicts of interest.
  5. InitialConditions

    NICE ME/CFS draft guideline - publication dates and delays 2020

    Minutes for a series of four guideline committee meetings in late April have just been uploaded: https://www.nice.org.uk/guidance/indevelopment/gid-ng10091/documents It looks as though the meetings were to consider the recommendations in light of a new 'post-exertional malaise re-analysis'...
  6. InitialConditions

    Developing an Online Program for Self-Management of Fatigue, Pain, and Urgency in Inflammatory Bowel Disease, 2021, Moss-Morris ,Windgassen et al

    I really hate this 'app for everything' approach. My mum lives with IBD. She manages it with medication, but sometimes it flares for no good reason. I have no idea what this tool would offer her that she hasn't figured out herself through common sense.
  7. InitialConditions

    Spotlight on Long Covid webinar series, The Royal Society of Medicine

    This session (Session 3) is chaired by Wessely.
  8. InitialConditions

    [BBC] What Covid-19's long tail is revealing about disease

    https://www.bbc.com/future/article/20210609-how-long-will-long-covid-last I don't think this has been posted yet. Apologies if I missed it. Reasonably good piece. Quite a few mentions of ME/CFS and speculation about the overlap and what's driving the illnesses.
  9. InitialConditions

    25% M.E. Group

    There won't be another delay. They can only report one delay to stakeholders.
  10. InitialConditions

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I think it's probably his house. Nice gaff! as they say...
  11. InitialConditions

    EXPLORER study: Exploring treatments for younger children with CFS/ME - Amberly Brigden, Esther Crawley

    I've never known someone getting a grant of nearly a quarter of a million as part of a PhD/doctoral training programme.
  12. InitialConditions

    EXPLORER study: Exploring treatments for younger children with CFS/ME - Amberly Brigden, Esther Crawley

    Publications from the author, here: https://research-information.bris.ac.uk/en/persons/amberly-l-c-brigden/publications/
  13. InitialConditions

    EXPLORER study: Exploring treatments for younger children with CFS/ME - Amberly Brigden, Esther Crawley

    They really love throwing money at this crap, don't they? "I'm going to interview some kids, and do some crappy and patronising qualitative analysis based on questionnaires." MRC: Take our money!
  14. InitialConditions

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    "I learned that my Covid-19 infection had probably induced a physiological stress response that put my brain in a state of high activation and had an immediate effect on my hormone, heart, gastrointestinal and immune systems." Paul discovers the concept of being ill.
  15. InitialConditions

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    He'd probably agree with them now.
  16. InitialConditions

    NICE ME/CFS draft guideline - publication dates and delays 2020

    Yes, I hadn't thought of that. Maybe the April meeting was cancelled. But surely they've not gone nearly three months without a meeting. They were part-way through going through the recommendations.
  17. InitialConditions

    NICE ME/CFS draft guideline - publication dates and delays 2020

    Actually, I emailed last month and had no reply. Perhaps someone else wants to try a further email.
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