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Further history/evuidene that NICE have form! - 2017 example Consultation dates: 10 July 2017 (9am) to 24 July 2017 (9am) * The Consultation breach has been resolved; NICE Enquiry (our ref EH82669) 11/07/17 I have had to challenge the NICE Consultation period 10th-21st July* and secure an...

"Just seen that this has been added to the current guidelines, which can be found here, https://www.nice.org.uk/guidance/cg53.." Good news with NICE now waving a clearly visible white flag. Well done to all who petitioned them! LocalME and the 25% Group, (like MEAction, Invest in ME and...

Moved post This is a Royal Society of Medicine Webinar https://www.rsm.ac.uk/resources/rsm-live/ Food for thought? Episode 54: One year on, what have we learned? Date: Thursday 10 December 2020 Time: 12:30pm - 1:15pm GMT Dear Sir/Madam, A year on from the first recorded cases of COVID-19...

The above has history, form and legs! http://80.6.88.110/publication/download/chronic-fatigue-syndrome-in-children-jcg0051-v2-id-1283

Cut and past into Google search file:///Users/barb/Downloads/Chronic-Fatigue-Syndrome-in-Children-JCG0051-v3.pdf (Facebook) is blocking me uploading this as a pdf file. Attached belwow

https://elearning.rcgp.org.uk/course/search.php?search=elearning Chronic Fatigue Syndrome Myalgic Encephalomyelitis This online course provides GPs and other primary care practitioners with an overview of the presentation, diagnosis, assessment and ongoing management of chronic fatigue...

Which was miraculously withdrawn this week.......

Posted elsewhere mods so feel free to move consolidate! Mod note: Go here to discuss this Suffolk guideline https://www.s4me.info/threads/me-cfs-services-in-the-uk.5625/page-10#post-307648 Joint Trust Guideline for the Management and onward referral of: CFS/ME (ChronicFatigue Syndrome /...

Oh Yes I did! I have no idea why emojis appear as they should not!

Outraged at Norfolk CCGs and East Coast Community Health slipping this one through- read it and weep! cc Tuller, Edwards, Speight, LSHTM, Kerr, Pheby, MEA, plus others BCC --------------------------------------------------------------- Joint Trust Guideline for the Management and onward...

FRom 2017, jane.gizber@nice.org.uk Communications Director @ National Institute for Health and Care Excellence (NICE) surveillance@nice.org.uk To Surveillance Team, Today as a registered stakeholder for NICE, in good faith, I have composed and prepared my response to your consultation...

NICE and the RCP are in breach of Government Guidelines on Consultation"The Compact" see below, I would suggest! Regarding Consultations, I have dealt with this conundrum before, including when NICE issued their edict in 2017 and I made a formal complaint. So suggest, we challenge the current...

Request from today. "Do you know how I can find the oxford Brooks research that NICE asked for with regards to children?" Is it shown in the cited reference section and graded in terms of evidence?

Scottish Parliament Wednesday 26 August 2020 Public Petitions Committee Myalgic Encephalomyelitis (Treatment) (PE1690) https://www.parliament.scot/parliamentarybusiness/report.aspx?r=12776&mode=pdf Very well done Emma Shorter MEAction Scotland

https://www.strathallantimes.co.uk/news/national-news/18795240.long-covid-four-different-syndromes---academics/ 'Academics said that more work is needed to help those who are suffering as they said that many are “not believed” when they seek help. Ongoing symptoms can include breathlessness...

Speaking of costs.-in the last NICE Guideline 2007, there was a costing table for patients (linked to the likely patient tariff system) of a typical service cost. I will look it out. Is there any mention of costing in this guideline? ( I must confess I haven't even read it due to other...

A little backtracking and history here-and a pointer that we need to interrogate and understand the processes which result in 'People and Teams' & NICE, if things are to work in our favour...... 'NHS People and Teams' (ie the remaining remnants of the ME Services roll out in 2004) - (some...

Don't bother- lightweight...

Tomorrow https://www.rsm.ac.uk/resources/rsm-live/ https://www.rsm.ac.uk/events/rsm-studios/2019-20/pen65/ We invite you to join us as we continue the COVID-19 series. Tune into our free, interactive webinars to keep informed and stay connected with health professionals, leading experts and...

Adolescence for many is a trial! Being down depressed challenged etc is all part of a 'normal typical adolescent journey'..... at least that was my 30 years of profession experience working with challenged young people in a Referral Unit. Most came through the PRUs eventually remarkably well...