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    Anyone tried Lightning Process for Long Covid?

    Sorry, should have provided some more context. She is a patient advocate for Long Covid patients. She’s aligned with the Norwegian ME association (ME foreningen) for all practical purposes. So warning against LP and it’s role in the Norwegian healthcare system.
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    Anyone tried Lightning Process for Long Covid?

    This might be of interest to you: Added google translate: “Super exciting meeting with the BBC today. They wanted to know more about the different country Norway and the Norwegian health authorities' connection to alternative treatment for #LongCovid. We had a lot to say about networks...
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    Trial Report Psychometric Properties of the REMAP Resilience Scale in a Norwegian Sample of ME/CFS Patients and Healthy Controls, 2024, Strand

    I get the idea that if you are more ‘resilient’ you are in a better position (statistically) to make better choices for yourself. This leaves some leeway for the causation they imply, but this very construct then has to assume some equality of options to choose from for all. So it implodes. The...
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    Grip test results and brain imaging in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    Wait, what? I will assume this has been mentioned before but they state that: “We also assessed changes across blocks with a two-way ANOVA (2 groups × 4 blocks), which showed that blood oxygen level dependent (BOLD) signal of PI-ME/CFS participants decreased across blocks bilaterally in...
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    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    Yes! For them to conclude like they do, risk has to be viewed as a constant and solely tied to the actual probability of getting the reward. It would have made just as much sense to assume that the two groups will seek to take the same risk, and that the difference in what the authors call...
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    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    Rob Wüst pointed out on Twitter earlier (with regards to his much appreciated publication in January) that he had been testing several former athletes with long-covid in his lab. He wrote something along the lines of that they showed the same abnormalities post exercise, even though their...
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    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    Is this really a way to do it properly? If the presumption is that they are probing the same underlying feature, would the number of tries not have to be factored in to the probability? Or is medicine just exempt the otherwise generally accepted methods of statistics? I actually can't get my...
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    Muscle abnormalities worsen after post-exertional malaise in long COVID, 2023/4, Wüst, van Vugt, Appelman et al

    Is this doable? The same blood swap experiments, but an array of samples, sorting and swapping according to mass (or size)? I mean, it’s a too obvious approach not to have already been considered, isn’t it?
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    A general thread on the PACE trial!

    Also, the nature of the changes made! Outcome swapping, altering thresholds, concealment of data that does not fit with the hypothesis. Every tweak made the results look better. That’s about as close as you get to revealing a motive without a confession.
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    Muscle abnormalities worsen after post-exertional malaise in long COVID, 2023/4, Wüst, van Vugt, Appelman et al

    Good luck to Carson if his last hope for him not to be absolutely wrong is DOMS… I would love the sweet feeling of DOMS instead of PEM, not least being able to exercise in a way that would provoke DOMS.
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    A safe and effective micro‑choice based rehabilitation for patients with long COVID: results from a quasi‑experimental study 2023, Frisk et al

    Co-author Marte Jürgensen claims she recovered from ME/CFS through the Lightning Process, and is/was also affiliated with Recovery Norway (vice president). Makes me question how they went from the initial 120 patients screened for eligibility down to 83 as well. I believe the protocol stated...
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    Immunological Patient Stratification in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome 2023 Rohrhofer et al

    Interesting clustering there indeed! Makes me think about altered metabolism, as in a shift in equilibrium at some level. Looks like two different states, with the eternal caveat of ‘needs to be reproduced in a larger dataset’.
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    Determinants of persistent symptoms after treatment for Lyme borreliosis: a prospective observational cohort study 2023 Vrijmoeth, Knoop et al

    It's kind of missleading to call it prospective. You cannot obtain reliable baseline data for someone who is already sick, what they have measured might as well be correlated to the severity of the infection. Looking at table 3 in the paper, both use of anti-inflammatory drugs and physical...
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    USA: National Institutes of Health (NIH) intramural ME/CFS study

    Indeed! Antigens are expressed during latency for a lot of viruses, seems more common than the average GP would like to admit.
  15. S

    USA: National Institutes of Health (NIH) intramural ME/CFS study

    On second thought, with 60% not having exercise intolerance, maybe Hwang’s wasf3 findings are a bit stronger than they first came off?
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    USA: National Institutes of Health (NIH) intramural ME/CFS study

    I don’t get this. The cohort supposedly comply with 3 different sets of criteria, but then the data shows they don’t? Really strange considering multiple 2-day CPET largely confirm exercise intolerance as measurable feature.
  17. S

    News from Scandinavia

    Chief of Defence(!) to be exact, the highest ranking officer.
  18. S

    Opinion Chronic fatigue syndromes: real illnesses that people can recover from, 2023, The Oslo Chronic Fatigue Consortium

    Ironic how 'false dichotomy' has been one of the go-to talking points of a lot of these names, they clearly wouldn't recognise a dichotomy if they ever saw one the wild.
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    Opinion Chronic fatigue syndromes: real illnesses that people can recover from, 2023, The Oslo Chronic Fatigue Consortium

    Cartel would be more fitting than consortium at this point. They’re way past the threshold of vicious competition anyway. Imagine studying and researching a whole career, only to achieve a perfect display of what is so carefully described in the literature that shapes their profession as...
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    Hypothesis The viral origin of myalgic encephalomyelitis/chronic fatigue syndrome, 2023, Maureen R. Hanson

    Isn’t it wise to keep Long Covid as a variable until further though? At last there’s an opportunity to acquire large datasets with lab confirmed positive tests from within a limited timeframe. The alternative is the possibility of further muddling the same old ME/CFS pool of data. Also, the...
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