This is just horrific. Is there no one fighting this in the literature, or in the training that physicians receive? I can't understand how this madness is going unchallenged. The human cost is huge.
Thank you. We desperately need to come up with something that will guarantee proper support for...
Thanks for posting this, @Yvonne - I just watched it, and it's what I'd want any dietician dealing with me to watch, if I got into nutrition difficulties.
I expect you've seen it, @Jonathan Edwards?
The big sticking point (as discussed in the video) seems to be avoiding being treated as though...
Thanks for posting that, @SNT Gatchaman. I just listened to it and it was fascinating. But as usual, I don't know how much of it was well-founded! Is Long Covid now accepted as an ongoing Covid infection hidden away in the body? If it is, does it always show up on inflammation markers? Would...
Thank **** for that.
How can we avert the potential fresh hell arising from this?
I'm not able to read the report. Does it distinguish responses from patients and patients' charities from those from BPS proponents? So that it's clear that it's not patients calling for more psychological...
This is outrageous, as a policy. People conduct coordinated campaigns when people in power perpetrate a major injustice and then refuse to answer to criticism. A pre-emptive policy refusing to respond to their complaints is just another two fingers up to the powerless.
I don't see why we...
In case it's even faintly relevant, after two viral infections over the last few years that were both probably Covid, I had for the first infection a single evening of desperate thirst, desperate water-drinking and half-hourly peeing that had all simply gone away by the time I got up the next...
Wouldn't that be weird, though? Maybe my case is odd but I can't properly relax my jaw during the day. If I try to relax it, other muscles in the jaw seem to get tense, and if I try to relax those, the ones I just relaxed get tense again, like a yoyo. I can't help but think that if I could relax...
I wonder if it would be worth writing to Susan Philips not to complain, but to point out the collapse in faith in Cochrane on the part of PwME and express our disappointment. The point would be to reach someone who might care, without risking their secretary just binning the email because it...
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