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  1. Shinygleamy

    Non-hospitalised Children & young people (CYP) with Long Covid (The CLoCk Study), 2021, Stephenson and Crawley

    Another stupid title 'Clock' Would be such an easy way to screen out the guff. 1.35 million for that woman is an insult to all that is honourable. I'm seeing the results now: children have long covid because they're traumatised and not going to school.
  2. Shinygleamy

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I have an issue with him suddenly claiming that he more or less had ME (fitting the criteria) even though he'd never been diagnosed as such. To me that was the most unprofessional act of all. You can't just go round claiming you have this or that without a diagnosis. It was noticeable before...
  3. Shinygleamy

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    He didn't recover from cfs because he was never diagnosed with it. The only thing he can claim is that he recovered from covid/long covid. I could say I was diagnosed with celiac disease and recovered from it but I never did either.
  4. Shinygleamy

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Just wondering if everyone feels there is a differance between his recent bmj opinion piece and his previous ones. Were they all unprofessional? Were some within the bmj opinion brief and others not?
  5. Shinygleamy

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I just wonder if they had a DR who had been through chemo then took up LP and claimed it was the LP that cured them whether the BMJ would have published it. Somehow I think they would have intervened. Personally Paul Garner comes across as having lost rational thinking on his situation and...
  6. Shinygleamy

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    One things for sure, other Long covid folks are now going to try this, when your life is slipping away you'll try anything. In 6 months we'll hear how it went. Garner makes the classic mistake of thinking other people haven't already tried this. I've been surprised when talking to other folks...
  7. Shinygleamy

    Open Medicine Foundation (OMF)

    Love the image of them all together lying on the floor. That's such a big thing for Whitney to be photoed with his family. (Tried to paste it into my message but didn't manage it)
  8. Shinygleamy

    Investigating reduced tolerance to alcohol in ME?

    I don't know if anyone's mention this yet but I'm sure wessely wrote about alcohol intolerance at one point, giving it as another reason m.e. must be psychological.
  9. Shinygleamy

    Investigating reduced tolerance to alcohol in ME?

    I always believed it was due to a sluggish liver, struggling to clear the alcohol from your bloodstream, the same goes for drugs.
  10. Shinygleamy

    BMJ editorial: Updated NICE Guideline on chronic fatigue syndrome, 2020, Stokes and Wade

    I would suspect professor (9-5) is one of the bps lot
  11. Shinygleamy

    UK - NICE guideline on Long Covid

    Just conducted an interesting experiment. Type 'professor of psychological medicine' (with the quote marks) into google and see what turns up.
  12. Shinygleamy

    UK - NICE guideline on Long Covid

    The BBC reported is being extremely disingenuous here calling him a doctor and not a psychiatrist. Why the omission? And listing him as professor of psychological medicine, what is that? ps There are some amazing psychiatrist's out there, why is it always the same old, same old?
  13. Shinygleamy

    BMJ editorial: Updated NICE Guideline on chronic fatigue syndrome, 2020, Stokes and Wade

    That's a very good point. The Nice guidelines are not for chronic fatigue! Why should they be allowed to put ME/Cfs folks into severe illness for a chronic fatigue policy that has no greater benifit to chronic fatigue, that time and your own urge to do things wouldn't do anyway. Also if it was...
  14. Shinygleamy

    BMJ editorial: Updated NICE Guideline on chronic fatigue syndrome, 2020, Stokes and Wade

    It reminds me very strongly of the dissolution of the slave trade. Those that that tried to stop it being abolished came up with all sorts of ridiculous arguments; black people are not human, etc, (a lot of todays racist beliefs came from that time) And who created these contentions? Slave traders.
  15. Shinygleamy

    U.K. trial Rehabilitation exercise and psychological support after Covid 19 infection (REGAIN) Warwick University

    PULSE study, REGAIN study. Anything sounding 'catchy' should be binned. And anyone creating these acronyms should be sent for retraining.:nailbiting:
  16. Shinygleamy

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    This was how my illness was treated. Every time I visited a dr I was given a new time frame for recovery and therefor nothing should be done about my suffering.
  17. Shinygleamy

    BPS attempts at psychologizing Long Covid

    He's seems determined not to diagnose anything in his patients. That could be fatal for the patient. Wonder what conditions he's overlooked.
  18. Shinygleamy

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Another similarity with M.E. I've seen people with M.E. who have severe physical symptoms early on, bedbound or in wheelchairs straight away, seem to recover better than the ones who seem less physically affected. Whether it's because their unable to do anything so rest at the crucial stages of...
  19. Shinygleamy

    Post-Exertional Malaise - a discussion including defining and measuring PEM

    Kids generally don't have the wordage or full comprehension of what words mean. I had been very fit and healthy child previously then was hit heavily by a lot of brain symptoms. I mainly would use phrases like 'I'm so tired,' which was highly inappropriate to describe things. I had no...
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