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https://www.theguardian.com/commentisfree/2021/dec/23/omicron-covid-19-long-hauler "Don’t dismiss Omicron as ‘mild’. Take it from a Covid long-hauler" "After all, those of us living with post-viral conditions – such as ME/CFS, dysautonomia, postural orthostatic tachycardia syndrome (Pots) –...

Moved post "Long Covid vs ME/CFS | Why There's Much We Can Learn From The Similarities” A video uploaded from Gez Medinger, (pre-Covid, film producer and director. Now, an investigative science journalist travelling down the rabbit hole of Long Covid). He has a following of 37k+ subscribers...

https://www.wypr.org/show/midday/2021-12-15/living-with-long-haul-covid-views-from-doctors-advocates-survivors "Living with Long-Haul COVID: Views from doctors, advocates, survivors" "Tom is then joined by Emily Taylor, the Director of Advocacy and Community Relations at Solve M.E., an...

https://patient.info/news-and-features/why-is-mecfs-research-key-to-understanding-long-covid "Why is ME/CFS research key to understanding long COVID?" "A large number of people with long COVID are reporting similar symptoms to those who have myalgic encephalomyelitis/chronic fatigue syndrome...

https://nyunews.com/news/2021/12/08/patient-group-raises-concerns-over-langone-long-covid-research/ "Patient group says Langone long COVID research forgets patients" “The past experiences and expertise of people with disabilities must not be erased the moment they become sick,” Misko said...

https://inews.co.uk/news/science/long-covid-patients-chronic-fatigue-syndrome-1325934 "Long Covid patients still suffering from chronic fatigue syndrome 15 months after infection" "Many long Covid patients are suffering from chronic fatigue syndrome (CFS) more than a year after their original...

https://hub.jhu.edu/2021/11/30/young-people-long-covid/ JHU: "Young People, Long Covid" "We want to raise attention that it's more than just death—we have people who have symptoms that linger with them for months on end, which can be just as devastating to families and individuals," says...

https://www.phillyvoice.com/long-covid-chronic-fatigue-syndrome-symptoms-treatment-research/ PhillyVoice: "Chronic fatigue syndrome may provide valuable insights into long COVID" "Studies have suggested that long COVID and chronic fatigue syndrome not only share symptoms, but similar...

https://www.upi.com/Health_News/2021/11/29/covid19-long-haul-chronic-fatigue-syndrome-study/1531638207439/ "'Long COVID' symptoms similar to chronic fatigue syndrome, study finds" "People with "long-haul" COVID-19 have symptoms of chronic fatigue syndrome and other breathing problems months...

https://www.npr.org/2021/11/29/1058063444/for-patients-with-long-covid-chronic-fatigue-syndrome-may-offer-a-guiding-star NPR: "For patients with long COVID, chronic fatigue syndrome may offer a guiding star" Some excerpts: "The deep fatigue Fisseha experiences is one of the most frequently...

NPR: "Coronavirus FAQ: What is long COVID? And what is my risk of getting it?" https://www.npr.org/sections/goatsandsoda/2021/11/18/1055071699/coronavirus-faq-what-is-long-covid-and-what-is-my-risk-of-getting-it "There's growing evidence that SARS-CoV-2 can sometimes trigger several post-viral...

"ME/CFS and Long COVID: A Discussion between Dr. Avindra Nath and Dr. Takashi Yamamura" Discussed here:Skewing of the B cell receptor repertoire in myalgic encephalomyelitis/chronic fatigue syndrome, 2021, Sato et al

I have received confirmation that Dr. Lucinda Bateman, part of the US ME/CFS Clinician Coalition, will be a part of the University of Utah's RECOVER Initiative efforts to study Long COVID. https://healthcare.utah.edu/publicaffairs/news/2021/10/hess-metz-grants.php After reaching out to a...

Sharing this event/dialogue from last week that contains a fair amount of ME discussion (the Q&A part with the researchers & clinicians begins around the 39 minute mark). Features Dr. Levine, Dr. Lipkin, Dr. Oved Amitay from Solve Anecdote from Dr. Lipkin:"The field of ME/CFS has made...

@Wilhelmina Jenkins, does this mean that ARPA-H is (likely) dead in the water for now? https://www.politico.com/news/2021/10/08/biden-biomedical-research-agency-spending-bill-515666...

Just wanted to pass here that the Pulminary Wellness Foundation's documentary film, “Long Haul” started yesterday and will run from October 11-24, 2021 as part of the Urban Mediamakers Film Festival. If interested: you can screen the complete film at https://www.urbanflixtogo.com as part of a...

I was just reading on ARPA-H yesterday while I try to get up to speed on it. When it says "under consideration" by US Congress, do we know what next steps are? How would this get passed?

https://www.nejm.org/doi/full/10.1056/NEJMp2109285 "Confronting Our Next National Health Disaster — Long-Haul Covid" This is an exceedingly well-done feature by New England Journal of Medicine, which is among the most prestigious peer-reviewed medical journals around. “The health care...

https://www.healthrising.org/blog/2021/08/14/chronic-fatigue-risk-coronavirus-infection/ "Nancy Klimas, by the way, has begun a study assessing both symptomatic and immune responses to the mRNA vaccines in ME/CFS patients that should help us understand why some people are better with the...

(Because this also mentions Long COVID/PASC, wanted to share, mods feel free to move if best fit elsewhere) Passing along this Twitter thread today from a Mayo Clinic MD on Severe ME Awareness Day. Many of us know how difficult it has been to inspire change at this specific facility, so this...