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>The views of children with condition and the views of their parents/carer, clinicians and teachers

On page 5, figure 2, it looks breaks down by type of pain syndrome (ibs, fm, cfs). CFS looks to have pretty close to normal odds except in one category, higher than normal swallowing problems and higher than normal functional problems. One important info missing is number of investigations to...

https://clinicaltrials.gov/ct2/show/results/NCT03613129 I thought there was a placebovgroup, bad memory maybe. So 14 pateints, no placebo group, a very weird primary outcome TDSS and are those massive confidence intervals in parentheses next to the outcomes? For all groups pretreatment...

None of his conclusions ever really sat with me, however, I admit I have never read the full papers as they are not easily findable and so I don't know how strong his evidence for the following is and I have relied on Cort for the summary. I do recoil at the word sensitization being thrown...

I wonder why this group produced 2 reviews (neuroimaging and metabolomics) in such a short period. Possibly a way to keep publishing during COVID?

drp-1 looks interesting, possibly a mediator of mitochondrial fission? Or could i be something like mitofusin-2 being overly inhibited and preventing mitochondrial fusion so the balance is off?

And not unrelated to mitochondrial fusion, Interesting. On another note, I can't help but wonder... if you take an H2 pill form and it really does work, is that creating a lot of bloating in the digestive track?

via healthrising https://www.healthrising.org/blog/2020/04/29/hydrogen-rich-water-chronic-fatigue-fibromyalgia-friedberg/

Interesting, I have a group of neuromuscular complaints (or that's the closest thing I can call them). They are essentially feelings of tightness and points of pressure and pain along the left side of my spine, about an inch out, from my jaw inwards to a major point of pain at the bottom of my...

Yes, but what is shocking here is they are unable to see their own inconsistency within 3 sentences! Did they write each one of them a few days apart and then have a stranger put it back together?

This citation to this is a 32 year old paper by Lipowski. A strange citation give that, as far as I can see, provides no evidence for the sentence it is supposed to support. http://citeseerx.ist.psu.edu/viewdoc/download?doi=10.1.1.469.4798&rep=rep1&type=pdf

What a bizarre start this paper has, they authors can't get over their own words to try to paint diagnosing sick people as a burden to the system. Oh except, sorry, we just said physicians don't diagnose them and patients are reluctant to use the medical system. But isn't it a shame we have to...

I think this is also a result of people w/o health problems being used to more favorable timelines. They assume they whole scientific community is working on it day and night so it must be possible. It'll be interesting if they do force a untested vaccine out after preliminary phase II trials...

CCI is frequently recommended to be looked into on Reddit in association with neck pain, for example 8 times in this thread. Threads like this are not uncommon.

A bit confused here. Maybe someone can help and it's a case of the bad brainfog. According this Cort blog, only 9 grants were submitted to the NIH SEP in 2019 (entire year). But unless there was another meeting later this year, that is not on the website, the last NIH SEP was in 3/19 (also...

Is it this? https://en.wikipedia.org/wiki/GDF11 I believe BMP is what some neurosurgeons were using in the fusions for CCI, but they are a different kind (3 & 7). I'm not familiar of any study examining their expression in me/cfs. Did he take it orally as a peptide? What was the original...

1/4 of the world's population is being tested at rates .0003 per capita but seem to have actively spreading COVID- India, Pakistan, Indonesia, Phillipines, Mexico, Brazil. Several of these countries began their lockdown relatively late - end of March and are very population dense. However, their...

I completely agree with this sentiment. Most importantly because we can't make assumptions based on a little data in a short space of time. But it also isn't helpful to either patient group to assume COVID related problems are the same or even similar to me/cfs. What if their fatigue is less...

Pep Guardiola's mother sadly passed from COVID. https://www.theguardian.com/football/2020/apr/06/pep-guardiola-mother-dies-aged-82-after-contracting-coronavirus-manchester-city-manager

posts 1303 in this thread by tiredsam (top of this page).