Carson
https://x.com/alancarson15/status/1755477162226770005
“Interesting trial- once again showing rehabilitative exercise is beneficial in fatigue states- there comes a point where @NICEComms is going to have to recognise the harm their anti- scientific guidance is doing”
I know of a case who had ME/CFS and fibromyalgia for 20+ years, got cancer, received cyclo and was unexpectedly cured of ME/CFS in the process. This was years before the Norwegian rituximab and cyclo studies so probably not placebo/expectation bias. However, the symptoms returned 18 months...
Abstract
Objective: This study assesses response to intravenous immunoglobulin (IVIG) in presumed autoimmune postural orthostatic tachycardia syndrome (POTS).
Background: POTS may be associated with autoimmune disorders, serum autoantibodies, or recent infection. Uncontrolled case studies...
You took the words right out of my mouth. This feeling was like nothing I had ever experienced and it was accompanied by a sense of something being profoundly wrong, doom. There’s no conventional vocabulary that can explain it. It’s not tiredness, fatigue, malaise, or any of this. It also had...
Rituximab as an adjunctive treatment for schizophrenia spectrum disorder or obsessive-compulsive disorder: Two open-label pilot studies on treatment-resistant patients
https://www.sciencedirect.com/science/article/pii/S0022395622006719
Abstract
In this explorative study, we investigated if an...
The bone marrow transplant case is somewhat problematic because the donor with schizophrenia was his brother. Having a first-degree relative with scz is a strong risk factor for developing this heritable condition. However, first onset in 60s is unusual, though not unheard of. I’d be more...
Abstract
Background
The role of inflammation in the aetiology of schizophrenia has gained wide attention and research on the association shows an exponential growth in the last 15 years. Autoimmune diseases and severe infections are risk factors for the later development of schizophrenia...
Seeing the word tiredness in association with this condition makes me very angry but I suspect the reason this word is used is because the NHS website in general (not just the ME/CFS entry) is written in childlike language. Other NHS disease descriptions also use trivialising language like "sore...
Stick blender was a literal lifesaver for me when I couldn’t swallow anything. I literally used that thing to purée all my food. Without it I’d be dead now.
I had a scary knife accident fairly recently which made me realise I was going to have to change the way I do things even if it compromises on freshness/taste (survival first). Since then, I started buying peeled/chopped frozen vegetables. Mostly frozen but there's also fresh stuff like squash...
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