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Carson’s statements are especially false and misleading because CBT has not only been conclusively demonstrated not to work for ME/CFS (PACE) but also for FND. The CODES trial for FND was a PACE-like effort led by the usual KCL crowd and the primary endpoint was negative despite the huge sample...

So basically telling you to come to terms with having crippling/disabling brain fog.

Excuse me? Discovering and treating neurosyphilis cleared out a sizeable proportion of long stay asylum cases with psychosis. “General paresis of the insane” Reading to the end of the article we discover why this nothingburger is being reported on. She needs participants for her trial! Of...

Weird article, why are they highlighting this now. This is incredibly old news, over 10 years old.

I don’t think the high prevalence of depression/anxiety/psychotropic meds in this study is surprising considering the demographic group in question. There was a chart floating around on Twitter the other day showing, I don’t know how accurately, that a quarter of middle aged white women in the...

If anything, it’s trending lower in the ME group. I’ve no idea why some think ME is an inflammatory disorder. That’s usually one of the first things that are ruled out when people are seeking a diagnosis.

Turned out to not be fear of standing after all!

There was also that systematic review discussed here on the forums a few months back where the search terms they used for the database search were FND, conversion disorder, hysteria etc.

That was the first concern that came to mind as I read the announcement.

The leading proponents of FND (those considered enlightened by the FND patient community) most definitely view it as synonymous to historical diagnoses of conversion disorder and hysteria. The difference is that they de-emphasise Freudian narratives about the wandering womb, conversion of...

They must be panicking about the economic impact of long covid. This initiative won’t work. You can’t wish away your disability.

I take it these people haven’t kept up with Anglosphere literature and debates re: GET. This reads like something out of a time capsule. It’s completely disconnected from where we are as a field.

From Brian Vastag’s thread. Very worrisome and yet totally predictable outcome. I remember reading the original protocol and thinking no one with actual severe ME/CFS will be able to endure this.

I don’t think this will work. You can push the heart rate down in POTS, but you’re still sick at the end of the day.

SPS sounds harrowing. I bet many of them get diagnosed with FND. Neurology seems to struggle with inconsistent or variable symptoms.

I’ve been around for far too long to get excited about any announcement. Call me jaded but none of previous BREAKING NEWS moments have panned out so why get my expectations up.

Cochrane sucks these days, and not just for ME/CFS. I was reading through some of their recent protocols for reviews in a field I’m in and was quite shocked by how badly done they were.

The bit about resting & enjoying it, it’s a shocking thing to see in an scientific paper. I hope it’s just non-native English, not malice.

The team are wasting no time putting valuable work out there. Impressed.