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  1. NelliePledge

    PEM and sweating?

    Difficult for me to say as I’m rather chunky middle aged woman so naturally have a tendency to sweat when I do any demanding physical activity.
  2. NelliePledge

    BPS attempts at psychologizing Long Covid

    Your style reminds me of Clive James :thumbup:
  3. NelliePledge

    BPS attempts at psychologizing Long Covid

    They are all coming out all guns blazing now with the NHS app and various articles highlighted on the news from Scandinavia post. I truly hope that long Covid people are able to push back sufficiently - with support on offer to them from PWME I would like to think that in 12 months time we’ll...
  4. NelliePledge

    UK - NHS England online tool and clinics for long Covid.

    No probs just wanted to flag his comments to you :thumbup:
  5. NelliePledge

    UK - NHS England online tool and clinics for long Covid.

    And JE has also commented on the disclaimer at #83 on this thread
  6. NelliePledge

    Who is Simon Wessely?

    Whatever your original motivation when you spout rubbish for so long you end up believing it.
  7. NelliePledge

    Coronavirus - worldwide spread and control

    More belated coffee smelling by U.K. government the isolation period for symptomatic people to be increased from 7 to 10 days https://www.bbc.co.uk/news/uk-53588709
  8. NelliePledge

    Psychologically Informed Physical Therapy for Children and Adolescents With [FND]: The Wellness Approach, 2020, Gray et al

    The physical approach exacerbates symptoms that’s where the psychology has to be deployed to stop the unhelpful belief the symptoms are exacerbated voila
  9. NelliePledge

    UK - NHS England online tool and clinics for long Covid.

    Sadly despite the NICE statement on GET I think this was to be expected from the people who were involved in putting this information together. They are the status quo and believe they are right.
  10. NelliePledge

    Pacing - what do you do/how would you describe it?

    Sounds like a great idea @Forestvon unfortunately I still do a lot of pretending to be normal. I think I probably need to try to see if I can get any help from Dr with orthostatic intolerance because friends & family aren’t going to be able to get their heads round me needing to put my feet...
  11. NelliePledge

    ETUDE: Encompassing Training in fUnctional Disorders across Europe

    Good grief this functional BS has got a high R value - very concerned for post covid especially those that haven’t got a positive test on their record.
  12. NelliePledge

    What Works in Mindfulness Interventions for Medically Unexplained Symptoms? A Systematic Review (2020)Billones and Saligan

    US based ME organisations should be questioning this. Anyone know if that is happening - @dave30th MUS on your side of the pond too this is concerning.
  13. NelliePledge

    Comforting factors that influence the severity of fatigue and other somatic symptoms from the perspective of CFS, 2020, Overgaauw

    Thanks Michiel you made me laugh. They would have done better to just cut out the ‘research’ and post their questions straight on here.
  14. NelliePledge

    The Science Bit: Post-Covid syndrome, Myalgic Encephalomyelitis, and the recurring pseudoscience of mass hysteria, July 2020, by Brian Hughes

    @Brian Hughes please could you write to Independent SAGE to highlight this issue?
  15. NelliePledge

    Pacing - what do you do/how would you describe it?

    Socialising outside your home is risky and almost impossible to pace so you don’t get any exacerbation of symptoms. being in a group of people all talking and laughing takes concentration and with time even as milder end PWME this is when I get any sensory overload Sitting in a chair where...
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