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It has been suggested we create a new thread for people to discuss lipomas etc. here are some links that have been highlighted as possibly of interest. the Fat Disorders Research Society (FDRS), https://www.fatdisorders.org/ Karen Herbst, Phd does a lot of research on this family of diseases...

Who writes these minutes I feel like a record with the needle stuck for going on about this a lot but the long blocks of unbroken text are really too hard to read. I want to email them to ask for it to be addressed.

I’m assuming some Patients really means all MUS patients are malingerering secondary gains types to those medics etc who are ‘in the know’ but they don’t want to be too blatant in case they get challenged. Just fudge so if you get called out you can wangle out of it by saying whatever you think...

Yes definitely.

Prof Lynne Turner Stokes should spend a month living under the same roof as someone she labels as MUS - see what she thinks about the ‘social mystique or importance’ then. eta I mean really - social mystique is right up there with catastrophising on the talking bullocks scale

It’s going to be interesting to see how these long Covid folks react when they realise how lightweight this NHS app thing is going to be. And I doubt the rehabilitation service is going to offer that much. See CFS clinics.

Yet more evidence it truly is a template model of ‘research’ if you churn out ‘study’ after ‘study’ and there’s barely any difference not surprising you can’t even remember the titles - they all blur and you can’t tell them apart. In practice you’re just making the same points whatever the...

:wtf:

NYD-N? Please spell out this acronym I’ve never heard of it.

Andrew Gwynne UK MP interviewed by Matt Frei on LBC Radio about post viral symptoms

Thanks @PhysiosforME for being role model for your colleagues in other professions :thumbup:

No but he is very accessible on Facebook he replies to comments.

It’s similar to planning a project. You can plan in advance for what ideally you need to do in week a b c d etc and what has to be in place for you to be able to do those tasks. In practice project plans have to be flexible to reflect the reality that the necessary elements aren’t in place. A...

Interesting tweet from Paul Garner And @dave30th has tweeted him

You definitely deserve hobnob status @Wonko The potato supplier is basically a scammer. Shockingly poor.

Presumably there is a manual?

I think it can depend on what you eat as well I get a boost off sugary food but feel rubbish later.

Ok good point. I think people would understand that if it was made explicit.

There’s a report about the letter but it doesn’t link to the content of the letter itself

It doesn’t appear to be on ME A website, don’t understand why not.