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  1. NelliePledge

    Is your "startle reflex” super sensitive?

    What I reckon ‘triggered’ insomnia and startle being heightened (not always but a good portion of the time). Was being regularly woken in the middle of the night by my parent who had dementia waNdering into the bedroom I slept in on fortnightly weekend stays and switching the light on to see who...
  2. NelliePledge

    Predicting GP visits: A multinomial logistic regression investigating GP visits amongst a cohort of UK patients living with ME: Walsh et al June 2020

    Apart from needing repeat visits when you’re trying to get a diagnosis I’m surprised by people having monthly contact with a GP.
  3. NelliePledge

    Coronavirus - worldwide spread and control

    Yes. And if not Corona it seems like some other virus judging by how much he was sweating and how ill he looked.
  4. NelliePledge

    Coronavirus - worldwide spread and control

    Another UK Cabinet Minister Alok Sharma Business Secretary is now isolating awaiting results of test. He showed symptoms while speaking in Parliament.
  5. NelliePledge

    Nurses for ME

    Oh gosh this sounds positive
  6. NelliePledge

    Chronic fatigue syndrome: progress and possibilities, 2020, Sandler and Lloyd

    Yeah I kept myself going pushing through on coffee for the early years of my gradual onset but it eventually became like poison to me and seriously aggravated the insomnia.
  7. NelliePledge

    Impact of symptom focusing and somatosensory amplification on persistent physical symptoms: A three-year follow-up study, 2020, Barends et al

    Yes an absolute mess. What sprung to my mind was an occasion when I was focussed on pushing through the flu type symptoms I’d got up and washed dressed set off driving to work and after 1/2 a mile a lightbulb went on that I really wasn’t well enough to be behind the wheel and therefore should...
  8. NelliePledge

    Impact of symptom focusing and somatosensory amplification on persistent physical symptoms: A three-year follow-up study, 2020, Barends et al

    I reckon most people with chronic illnesses literally do the opposite of symptom focussing. Anyone with gradual onset ME will have gone years undiagnosed pushing through symptoms.
  9. NelliePledge

    France: Bio-Modelling Systems to start phase II clinical trial(s)

    What do they mean by energetic treatment? Are there any specifics?
  10. NelliePledge

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    This. The decisions were in the past. The impact of the decisions is in the past, present and the foreseeable future.
  11. NelliePledge

    Covid-19 - Psychological research and treatment

    See - the psychosomatic nutters aren’t all on this side of the pond.
  12. NelliePledge

    UK - Resources for help getting food during quarantine and other supermarket related problems

    Just a heads up that you’ll need some good luck finding any actual chicken in the fray bentos pie @Wonko i bought some fray bentos pies for my last food bank actual food donation before I swapped to giving them cash. I always try out the products myself so I know whether they are reasonably...
  13. NelliePledge

    Coronavirus - worldwide spread and control

    So apparently the U.K. think quarantine (of sorts) for inbound air passengers will be a good idea but only from the end of May:banghead: https://www.bbc.co.uk/news/business-52594023
  14. NelliePledge

    Closed Fred Friedberg (University of Stonybrook) Hydrogen Rich Water; Heart rate variability biofeedback in CFS

    So it’s possibly not going to cause physical harm to those who rush to try it for themselves but as usual it will definitely damage their budgets. I find myself unable to summon any enthusiasm at all. Presumably one day someone is going to have some kind of genui breakthrough but I’m far to...
  15. NelliePledge

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Tagging @dave30th just in case you’ve not seen this evidence that at least some post covid are getting handled as MUS
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