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https://www.bayarealyme.org/blog/research-funded-by-bay-area-lyme-foundation-identifies-new-investigational-therapy-regimen-capable-of-irreversibly-damaging-lyme-bacteria-in-laboratory-tests/ In vitro tested, so early yet.

Which of course got its start in the US at the University of Rochester. :)

Yep. It's been on the table in the US for quite some time. I don't think it's made any noticeable dent in enough of the broad ME/CFS community to warrant any excitement at this point. It certainly did not help me. But it could be different elsewhere I suppose.

IMO, this may be the crux of the matter, the pivot point around which the debate spins. Can we trust the diagnostic metrics that historically have been brought to bear?

At the very least, in many cases, part of a tandem. In some, the whole story. Too many prohibitions against tissue testing, too much sketchy goings-on with regard to specific pathogens for comfort.

Yes. Extraordinary implications for a significant portion of "healthy individuals." Potentially.

In this example, are they speculating ME/CFS could be a channelopathy? I do realize it's just an example. but the emphasis on electrical variations could be consistent with a channelopathy, in theory. If so, it would be an acquired channelopathy. Well, at least in part.

What a thoroughly odd read. Left me with the feeling Fauci and the NIH never heard of Lyme disease. Or Bartonella. Or Babesiosis. Or....

For far too many, the healthcare sector doesn't and can't.

It's easier, I suspect, to embrace a specific theory when the pathogen causing the root disease is widely known and uncontested. Add, potentially, the belief that the public has been misled at some point, that's a powerful mix. It's no coincidence they've mentioned chronic Lyme as a cautionary...

Bad patients. Problem solved.

I thought it said Boston area. It might help if they'd cover travel expenses, then they could recruit outside Boston metro.

This website is being widely applauded in Lymeworld. They seem to think the CDC is acknowledging Bb as a cause of persistent symptoms on the website. That is not the case. Moreover, and more pertinent as far as I am concerned, I cannot seem to find the word "disabling" in any of the symptom...

Absurdly understated. Another "aches and pains of everyday life" moment. Lip service. Not good enough. Worse. It's like an embossed invite for misunderstanding. This is low-hanging fruit for foraging BPS hillfolk. "Other symptoms are unexplained and general (e.g., fatigue or difficulty...

Clearly, I missed something...

Heard this tune before. Still don't care for it. ETA: Maybe if they added the word "Conventional" in front of "Cerebrospinal Fluid Biomarker Abnormalities".

Maybe the subtitle to that article could be "Fear and Loathing in Long Covid", with a nod to Hunter S. Thompson.

FWIW, the million $ question for me is whether ME/CFS reflects pathogen persistence or immune dysfunction (including autoimmune responses). It could be something else, I know, like an acquired channelopathy, but my money rests on one of those two. Science is paramount, but I try not to lose...

If 95 out of 100 people turn their backs on me, and I ask "Why is everyone turning their back on me?", that strikes you as a conspiracy theorist? As undeserving? As overblown or over the top because I, in effect, rounded up a little? And I mean, just a little. I think context matters here. That...

The point as I see it is that the problem is pervasive and systemic. Further efforts to improve the situation likely will not be realized without underscoring that point. We 're still deep in the hole here. Yelling for basic attention and help as medicine strolls by seems quite reasonable.