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Not what Dr. Steven Phillips, a TBD specialist was saying, and Dr. Steven Phillips and his patient - both Lyme patients at one time - were the lead for the podcast or whatever. Perhaps it happens later in the video.

This clip is way too long for me to watch in one or two sittings. It's close to 45 minutes long. Is there any part in its timeline that stood out as troublesome? I watched the first 10 minutes, and I saw nothing remarkable. ETA: The theme, at least early on, seems to be that anyone diagnosed...

This was my thought precisely.

Yeah, nematodes get around. I think I read somewhere a while back they've been found on a space shuttle after returning to Earth. They are widely dismissed as being a meaningful factor in TBD's, but... There's a boatload of things I'd like to run more tests on, including nematodes, if only to...

Got to love the authors that in this paper acknowledge not just chronic Lyme - pretty much every one did back then pre-vaccine craze - but sero-negative Lyme as well. I think two of them were among the dozen or so authors of the 2006 Lyme Guidelines.

Did you know that when Willy Burgdorfer was running labs on samples he was shipped from Long Island, NY, in which he would eventually discover the spirochete the world identifies with Lyme, close to 100% of all the patient samples he looked at tested positive for a ricketsia? The results were so...

Does Bb cultured in blood suggest an artifact? Besides, you won't find many knowledgeable Lyme patients who like any form of the first tier, IFA or other. But that's what the Lyme gamekeepers prescribed decades ago with a puzzling algorithm, so an entire generation has been stuck with it...

Why? If the treatment doesn't work, what are the implications? If it does, similar question: What inferences will be derived?

:eek::(

Just remember, Dapsone comes with potential baggage. I seem to recall Hemolytic anemia possibly being one, for example. H suggests limiting treatment duration to,hmm, I don't remember. But not long. It's been my experience (personal and relayed) that some clinicians shrug off those constraints...

One thing I've learned over way too long is that research-smarts is not necessarily the same as clinical-smarts. In many ways they are cross-elastic and overlap. Sometimes, however, they can be divorced from one another. I love reading the research, but I often take findings with a grain of...

Antibody titre, off and on. Most of the time I test negative. I can usually anticipate a flare as I test positive for hemolyitic anemia just before I do. I've tested microti-positive through Mayo and the NIH, so, eh, pretty good facilities. Treatment? Yes, I cannot remember what I took, though...

Don't think TBE is in the US. But these symptoms noted in the article could - I'd think - ring a bell with many in this forum. Unlike the 3 B's, TBE is caused by a virus.

If you test positive for duncani then you're automatically excluded. Check out exclusions. One is if patient is infected with any other tick-borne disease.

Speaking of long term TBD sequelae, do these symptoms after Tick-Borne-Encephalitis strike a cord...

Both b duncani and microti may run chronic, at least as far as I can deduce. There is some positive news purportedly for sufferers of long term b microti, but even then, you'll probably know treatment recommendations are a minimum of six weeks, and that with a tier 3 drug, and no guarantees...

Most people have no idea...

How could they not get 24 Lyme patients when Columbia is literally surrounded by areas that can be characterized not merely as Lyme endemic, but arguably Lyme epidemic? You've Connecticut to the northeast, Long Island to the east. New Jersey and PA to the west. Puzzling.

As an aside, but uncomfortably related matter: My wife just got a new pacemaker defibrillator. It comes with a wifi monitoring device that somewhat resembles Amazon's Alexa. She was told to leave it on 24/7 so they could always have her monitored. She protested on invasion of privacy grounds...

Well, not just incompetence and dysfunction. I'd add greed and legacy concerns and govt interests and laziness and corruption.