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    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Sometimes I think medicine is etch-a-sketch art. You can create whatever picture suites you at any given moment, then erase and start over with an altogether different picture. If history stands for anything, I suspect that is what will happen with LC. Once the pandemic is truly in the rear...
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    Persistent SARS-2 infections contribute to long COVID-19, Jacobs, 2021

    I must admit I am not up on my Covid research. But if Covid is potentially securing priviledged sites in tissue, and it cannot easily be found in serum, short of biopsies (hit or miss since we've no way of knowing yet what preferred tissue might be), or autopsies (these days far from a given)...
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    A clinical primer for the expected and potential post-COVID-19 syndromes, Walitt and Bartrum, 2021

    "We anticipate that the most common sequelae to COVID-19 will be a postviral fatiguing syndrome and its persistent mix of somatic and psychiatric complaints in the absence of a clearly observable cause." Small wonder. What do they mean "in the absence of a clearly observable cause?" I was...
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    The theory of effort minimization in physical activity (TEMPA), Cheval, B/ Boisgontier, M (2021)

    Seems to me there is an argument to be made for a correlate, a cognitive one. TEMMA: The Theory of Effort Minimization in Mental Activity. If there were, I would subscribe to it. I do my best to minimize concentration, strong emotions, math, judgement...I do not mean this ironically. I pay a...
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    Treatment with Disulfiram (Antabuse) seems to help

    Welcome, @5vforest ! I think Fallon's NIH excursion was slated to wrap up early this Spring. I'm not sure if covid has caused delays. The good news is it's a structured study. Bad news is I think it's on the small size, like 24 or so patients. With an annual infection count in the US alone...
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    Webinar: Scientific Research on ME/CFS in the Age of COVID-19 - Hanson, Lipkin, Nath - Oct 26th, 2020, 6 to 7pm ET.

    Not sure about his talk, but technically the slide in question does not say EBV or SARS etc cause ME/CFS. It says x % of patients infected with those develop ME/CFS symptoms. Also, Chia is part of one of those research teams; it's a stretch to think Lipkin would be unaware of his efforts, but I...
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    Webinar: Scientific Research on ME/CFS in the Age of COVID-19 - Hanson, Lipkin, Nath - Oct 26th, 2020, 6 to 7pm ET.

    I did not listen to the presentations, so perhaps it's folded into those, but I could not find anything definitive in terms of cohorts' distribution through the US. My sense, based on the slides, is that a majority are from within the US, and of those, most come from the NorthEast/MidAtlantic...
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    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I was just being silly. I agree with you 100%. There are many things I struggle to convey these days, and sarcasm is one. My bad. But to your point that I highlighted, only in a good world with no agenda other that pure scientific inquiry. This is not a good world, and pretty much everyone has...
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    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    But they do realize medical economies like streamlined reasoning, stripped bare of some unessential, and essential, thought and effort.
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    Genesis and dissemination of a controversial disease: chronic Lyme, 2020, Gocko et al

    When I introduce to a doctor something I got off the web - which is A LOT - I try to note its pedigree. I point out its true source, e.g, researcher and publication, whether NIH-sponsored or otherwise. I have far too many clinicians AND researchers who are clueless to backstories they should...
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    Genesis and dissemination of a controversial disease: chronic Lyme, 2020, Gocko et al

    If they are insinuating patients on the internet created the concept of chronic Lyme, they need to do some more homework. IDSA and NIH papers are laden with chronic Lyme references well back into the early and mid-'80's. There are a ton of case studies, the most famous (infamous?) of which may...
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    Genesis and dissemination of a controversial disease: chronic Lyme, 2020, Gocko et al

    First sentence into the narrative: "The existence of a chronic form of Lyme disease is a source of worldwide controversy." No, it is not, nor has it ever been - at least for clinicians and researchers and patients with a bit more than a simple, superficial relationship with the disease.
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    Finally, I’ve found what caused my brain fog, chronic fatigue, depression and aching joints...an insect bite! - James Delingpole

    Well, technically, "a" Lyme treatment. :) Incidentally, PCR's are far more likely to have a false negative when it comes to Borrelia, than a false positive, simply by virtue of the spirochetes aversion to blood.
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    Typical Lyme Story, Atypical Victim

    Yes, I wasn't suggesting what was dropped in 1962 was either babesia or Lyme. Indeed, neither seems likely since, according to Newby, one of the crew members brought a contagion back with him and it infected one of his children with a "long, hard-to-remember name." The child recovered. But a...
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    Typical Lyme Story, Atypical Victim

    Records are sparse, but apparently enough survive for Newby to piece a narrative together that suggests directives mandating "non-lethal" agents, with an eye toward disabling large swaths of sugar cane laborers for protracted periods to disrupt Cuba's economy. Weaponizing ticks was happening...
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    Post Covid-19 syndrome associated with orthostatic cerebral hypoperfusion syndrome, small fiber neuropathy and benefit of immunotherapy, 2020, Novak

    "...both OCHOS/SFN were attributed to Post Treatment Lyme disease Syndrome of presumed autoimmune etiology." Presumed? Is that how they do medicine? "Patient recovered on symptomatic therapy." Bets? "COVID-19 triggered exacerbation of OCHOS/SFN..." Oh, so the patient hadn't fully recovered...
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    Typical Lyme Story, Atypical Victim

    I find myself wondering if Willy interacted with Erich Traub of Operation Paperclip fame. I cannot see how they could have avoided at least meeting one another given their respective expertise and frequency of visits to Ft. Detrick, and/or the conference circuit.
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    Typical Lyme Story, Atypical Victim

    Makes for a good read, though. :) She's on my list of author's I'd like to talk to.
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