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A scientist wanting to test a hypothesis should do everything they can to try to disprove it. If you only look for things that support it, you haven’t proved it's correct, just that there is some evidence supporting it. Whereas if one of your attempts to falsify it works, you know for sure it's...

Some posts have been moved to this thread: Ed Yong: Articles on Long Covid 2023

The second speaker introduced by Paul Garner is a professor of health psychology. Again, I skipped through it. He shows some data and experiments, and concludes that in acute illnesses what is happening in the body leads to symptoms, but in chronic conditions like ME/CFS, FM, IBS etc, the link...

Screenshot from the first speaker https://www.coffi-collaborative.com/post/live-seminar-mind-body-neural-pathway-disorders-as-a-way-to-explain-chronic-fatigue-syndromes I didn't watch much of it. He's a retired neurobiologist speculating about what might cause chronic fatigue. The woman who...

It's hard to know why some of these listed are on the scientific advisory committee, as information about them makes no mention of COFFI or any interest in 'fatigue syndromes'. For example...

From google: So it looks like all their between group outcomes were not significant. You can see that from their graphs without any fancy stats. They get around this by saying it's a small feasiblity study, not a test of efficacy, but if a study with over 40 participants in each group can't...

Which is exactly what patients and decent scientists have been saying for decades. The so called paradigm was indeed developed, as they say, with a step in the scientific method missing, there was no attempt at falsification. They made it up and set out to 'prove' it in trials carefully designed...

Abstract Background and Objectives: To examine the feasibility, acceptability, and preliminary efficacy of a positive affect skills intervention for middle-aged and older adults with fibromyalgia syndrome (FMS). Research Design and Methods: Ninety-five participants with FMS aged 50 and...

Part 1: General concepts on mind-brain-body interactions Speaker: Per Alf Brodal Per Brodal is MD and professor emeritus in neurobiology at the University of Oslo, Norway. A main interest through his career has been to bridge the gap between basic neuroscience and clinical medicine. His...

Hmm. Here's more about the seminars tweeted about by Paul Garner: https://www.coffi-collaborative.com/post/live-seminar-mind-body-neural-pathway-disorders-as-a-way-to-explain-chronic-fatigue-syndromes Live seminar: Mind-body, neural pathway disorders as a way to explain chronic fatigue...

I listened to a BBC radio program yesterday by Dr Michael Mosely. He usually annoys me with his jolly 'just do this for a healthy life' advice, but I thought of this thread for this one. He was talking about temperature and sleep, and recommended keeping the bedroom cool at night, and evidence...

Tweets seem to be not showing on the forum at the moment, at least for me. I'm no longer a member of twitter so can't see anything beyond the first post linked above, which says:

I'm certainly not closed minded about this, and it's nothing to do with what I would prefer the truth to be, but multitudes of pwME have been prescibed antibiotics for infections unconnected with our ME, and there have not, as far as I know been hundreds of people saying antibiotics cured their...

Their logic seems, as exercise specialists, to look for why people with Long Covid experience exercise intolerance. They are accustomed to looking to the lungs, heart and muscles for explanations, and diagnosing deconditioning. In Long Covid, they find these don't provide adequate explanation...

A post has been moved to: £622,000 grant to improve diagnosis and treatment for ME/CFS and Long Covid

Big thanks to Andy, Chris and Sonya for an excellent webinar. It's the first one I've managed to watch for quite a while from the team and as ever I'm impressed by the thoughtful, professional and patient-friendly way the whole project is being run. :trophy@

Please only post on the forum information that is in the public domain and add links to that public information. Speaking with my forum moderators hat on, we don't allow any individual patient's private information or personal medical details to be discussed here without their permission.

There has been much discussion about B cells and ME/CFS and rituximab and other drugs on this forum. Here's a link to a recent thread which I found interesting. Pilot study in Norway - Daratumumab in ME/CFS

:cold_sweat::grinning::joy::laughing::sob::weary_face::tired_face::pensive:

Hi @Pibee, thank you for sharing your experience of discussing this with the researchers and patients. Are you a clinician working with these researchers? I can't imagine how anyone would get such access to patients in a trial because of confidentiality for the participants.