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Her treatment regimen is acid-base woo all over again.

Long-term disability?

PBS has nailed it again. Lots of good quotes:

If your first infection has a 4.0% probability of causing long Covid, your second has a 2.4% chance of giving you long covid, and the risk decreases by the same ratio (40%) each infection, your cumulative LC risk approaches 10% as the number of infections becomes large.

Yes, having more participants is like having a higher gain antenna, you pull the signal out of the noise. Man, I really hope we get enough participants to show something strong. If we found several several genes that had nothing to do with cognition, with adjusted p of 0.0001, that would blow...

At a very minimum, 10% of my suffering is due to lack of acceptance as a biological disease.

No, totally different. That was bocidelpar AKA ASP0367.

I'm going to wait until their paper is out. We've been burned too many times by researchers hyping up their own findings.

Wow, I'm surprised. (But still skeptical)

There's significant pushback. There were 56 comments when I opened it, and about half were supportive of LC, half dismissive.

Constantly updating participant numbers is unnecessary, but an update every couple months would be very informative.

Considering the alternative, I just might go with Windows.

If there's software in my head, I hope it's not from Microsoft.

As of January, over 17,000 people had completed their questionnaire and over 9,000 were asked to give a sample. That's the most recent update I know of. For context, they want the DNA of 25,000 total pwME. Not everyone is asked to give DNA, perhaps due to comorbid conditions etc., but the...

PaxMedica, Inc. Provides Business Update and Reports Fourth Quarter 2022 Financial Results https://www.marketwatch.com/press-release/paxmedica-inc-provides-business-update-and-reports-fourth-quarter-2022-financial-results-2023-03-29 Takeaways: They want to get suramin approved in the US for...

AIM ImmunoTech Announces Central IRB Approval of Phase 2 Study Protocol Evaluating Ampligen® for the Treatment of Post-COVID Conditions https://www.tmcnet.com/usubmit/2023/04/04/9788662.htm They've gotten approval from the group that reviews studies' ethics. The estimated start date on...

I'm not sure if you could get me to drink celery juice, even if it was the cure to ME lol.

This is horrible. It recommended CBT/GET for someone totally bedridden due to severe ME:

I'm now playing with it extensively. It think CBT/GET is the answer to everything apparently. I tested its response to being tole CBT/GET made someone worse: How would it view my case, considering my mental health history, the presentation of my illness upon its onset, and my inability to...

Glass AI--AI that generates differential diagnosis and clinical plans Recently I learned about this AI tool, which is currently available for anyone to use without cost or registration. Edit: Darn I forgot the link: https://glass.health/ai I'm playing around with it to see how well it...