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Do you have a link for that?

The government needs to consider this when ME drug research gets serious. If someone invents a drug that's effective but very dangerous, perhaps it makes you very vulnerable to cancer, or damages your liver over several years, it should still be approved and pwME should have the choice to take it.

Why do the hard work of understanding pathophysiology, inventing drugs, and getting formerly bedbound people back to normal lives when you can sit in your armchair and philosophize?

Absolutely, even sporadic job losses will put companies in a jam. And mild declines in cognitive function will have major costs when they cause someone to forget a brilliant idea or result in a serious accident. These effects are so subtle that even guesstimating the costs is hard.

Translated by me (not Google!) Banco de España (Bank of Spain): The latest reports from CIS Institution's "health barometer" show higher demand for healthcare in our country and an increase in days of work lost to sickness, short-term disability and accidents. (The graph is titled "Economic...

Maybe it's a year on Uranus, considering its origin.

Excellent job to Workwell and their partners. The graphs can be freely shared (Creative Commons license) and are an excellent demonstration of how exercise affects PwME, and the huge difference between us and healthy controls. Modeling PEM as a "drug" is an interesting exercise but reveals...

It still shouldn't take two doctors.

This was recently discussed in Useful arguments regarding the evidence provided by psychological and biomedical ME research? Here are transcripts. 2-min Twitter vid 5-min highlight vid Edit: Break into manageable-sized paragraphs

99% with PEM, yikes. I'm sure that's skewed because PwLC + PEM are more likely to visit BHC than PwLC and no PEM or mild LC, but the high prevalence of PEM in all PwLC, and almost 100% prevalence in some cohorts, is cause for great concern.

I'm 4 years in. It's been a consistent non-24 pattern and sleeping 10-12 hours, with minimal trouble sleeping besides sleeping at inconvenient times.

I find it odd that the UK is making two major changes in just a decade. (The previous one was the phaseout of ESA?) Disability benefits haven't been reshuffled in the US in decades. Social Security began paying benefits to older disabled workers in 1956 and younger ones in 1960. SSI (for people...

They're gonna make it like the electromagnetic spectrum: Long Covid Very long Covid Ultra long Covid Super long Covid Extremely long Covid Tremendously long Covid Infrared Covid Visible Covid Ultraviolet Covid X-ray Covid Gamma Covid

I got a sleep test when I was being evaluated for ME. It was totally normal except I couldn't sleep much in the lab.

This will severely harm pwME if there are false positives. If it confirms the presence of a mental condition secondary to or unrelated to ME, there's a high risk clinicians will believe it's the cause.

What if ME and FND could have similar pathologies? Perhaps FND causes mostly overt neurological symptoms because the pathology only affects specific regions of the brain, where ME affects more of the brain and causes problems in other parts of the body.

As we speak, ChatGPT is sending hundreds of threatening emails to Simon Wessely, Peter White and Trudie Chalder.

The first ME drug is likely to be a treatment rather than a cure. With no competing treatments, the inventor will be able to demand exorbitant prices until the patent expires.

It's a good sign when money is flowing into developing drugs for LC