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I know nothing about this drug, but I say, try anything!

This reply to Dr. Davenport's thread resonated with me: Text of the image: A great quote from a study from Stanford University by a Chu et al: "Contrary to come sources which have intimated that patients affected by ME/CFS are reluctant to admit the role of psychological or emotional factors in...

It feels like these scientists are trying to stay relevant by posting this. The tone of BPS researchers regarding ME was always overconfident superiority. Now the tone is one of being left out, and trying to get back in. "Why is the world ignoring us?" That's a positive sign.

It's interesting that Indeed, a company with nothing to do with healthcare, seems concerned about the impact of long Covid. It's now recognized as a big enough health problem (in some circles) that we're not just analyzing the illness, we're analyzing the effects on broader society.

My position is that Dr. Pretious's findings likely represent some actual different in the blood chemistry of pwME vs healthy controls, but is likely a non-specific sign and a downstream effect of other problems rather than a main driver of symptoms. Microclots are interesting, but I don't see...

I didn't know that Dr. Shepherd got ME from chickenpox.

I agree. It's very strange that BPS people don't recognize the existence of cognitive PEM. In fact, my cognitive PEM is far more disabling than physical PEM. If PEM was only physical, I'd be in poor health but still be able to live a normal-ish lifestyle, as I can do my job at home at my desk...

If energy metabolism in the brain is disrupted in ME, the brain's need for different fuels depending on task might explain some of our symptoms.

As someone who personally has tics, I'm not sure how to parse this article. Tourette's is diagnosed from signs and symptoms alone, and the frequency and nature of my tics seem to vary both randomly and with my mental state. For example, I don't have tics when I'm completely engrossed in...

Google Translate link: https://www-aerzteblatt-de.translate.goog/nachrichten/138766/ME-CFS-ist-fuer-die-allermeisten-Betroffenen-eine-schwere-und-chronische-Erkrankung?utm_source=dlvr.it&utm_medium=twitter&_x_tr_sl=auto&_x_tr_tl=en&_x_tr_hl=en-US&_x_tr_pto=wapp It's an interview with Dr. Carmen...

This is an incredibly embarrassing title. I showed it to my mom and she basically facepalmed. It's distressing that some people don't even discuss ME the way they discuss all other illnesses. Recovery is not "homecoming," it's not having symptoms or disability anymore. Addendum: Worse, the...

Sorry, I said this is an expression of shock. Unfortunately, this is all very true. I jotted down a few thoughts while watching the video from start to finish. I've seen many discussions of informed consent healthcare for trans people, but she present this issue in an erudite manner and from a...

Is this a joke? I live in America and there are six clinics within an hour of me where people can get HRT with informed consent. I wouldn't even need to see a mental health professional, just agree to it like any other medication.

I don't live with chronic pain, but I imagine that people who do want most research funding to go towards fixing their pain, not dealing with it.

Quite a novel way to look at ME. It's good to look even if nothing is eventually found.

Wow, that's solid reporting. The way they portray pwLC is the same as how people with other severe illnesses are portrayed. The first scene, for example, features someone talking their morning pills. There are few small negatives I notice. One blemish is that they try to compare the prevalence...

I'm disappointed they didn't break down their findings by vaccination status. Eyeballing the chart, it seems like vaccinated outcomes are similar or even worse than vaccinated. We know vaccination reduces the risk based on studies designed to do that. My guess is that this study can't give...

I'd recommend against referring to people with long Covid as "otherwise healthy". "Previously healthy" or "without comorbidities" would be more in-line with how other conditions are discussed. It somewhat connotes that the illness either isn't real or isn't serious. "Besides having...

So, a quarter of children with a severe, chomic illness had depression? And the sicker they were, the more emotional distress they experienced? Exactly what we would expect. It's a Crawley paper though, so I imainge they're trying to claim that depression is a factor in ME.

Excellent example of how a supposedly harmless, but ineffective, treatment can indirectly cause harm.