Search results

Completely false. N95s filter small particles effectively. They are rammed into the filter material by Brownian motion.

Transcript: Chris Cuomo: I started this Substack at thechriscuomoproject.substack.com because we need communities on Long Covid were people can trade information about symptoms and what they're doing and if anything is working. Nearly 20 million Americans may have this, and I say may...

If I'm immunocompromised, how often can I get the Covid shot in the USA? And how to get it in practice? I would like to get it more often than yearly like healthy people do. I'm going to tell them I'm immunocompromised because I have ME. (I'm not here to argue about the veracity of that...

Can someone please figure out if this estimate includes vaccine effectiveness? E.g., are they comparing the LC rate among people infected, or the LC rate among all people?

I only notice that if I go way past my PEM threshold, I'll be immediately tired but it shifts into full-blown crippling PEM, but if I go just over my threshold, I will feel ordinary tired, recover, but then experience PEM later.

I also have differences between physical and mental PEM. Physical PEM tends to hit 3-12 hours after activity, the more intense it was, the shorter the delay. The fatigue is different for ordinary tiredness, which I experience too. When I have PEM I'm so tired it's almost like I've been tied...

These authors are well-informed on ME/CFS. My translations are rough around the edges but give a good feel for the authors' views. I included the first few words from the original-language text to facilitate looking it up. They're well aware ME/CFS is often poorly understood: PEM is the main...

I think you're getting at the core of my problem because I don't know if the solution is a lawyer or a doctor. Or a lawyer telling me what to say to a doctor. I don't think it would hurt to give my lawyer a call.

Title. Jurisdiction is Pennsylvania, USA. Because I have very poor quality of life, I want to make sure I'm never resuscitated or intubated, no matter what. I got an advance directive that requests DNR/DNI/comfort care only, which should work in healthcare facilities. (Getting a DNR is wholly...

Long-term follow-up: I put the following in my advance directive:

I am taking Truvada for its intended usage to prevent HIV. I'm taking it as 2-1-1 PrEP, which fits with my lifestyle and should minimize side effects. I did a dry run when I got it, taking it for 3 days as explained, and it had no apparent affect on my ME symptoms. It caused mild, sporadic side...

It's disappointing that he only advocates for us after he retires. Maybe he's no longer pressured by his colleagues or has more time to ponder things.

I also read the whole paper. It's a thorough, well-written explanation of how ME was stigmatized. The author affirms us and doesn't mince words.

Yes, the more things we compare, the more likely we are to get a significant result

If you're in pain, they should just give you as much opioids as you need. It's better to be addicted to drugs than in intractable pain.

You're right, I saw that later. Still, that really needs reproduced.

I appreciated your summary and there's a decent amount of good research here. I'm surprised you listed the home-based testing and FUNCAP questionnaire as honorable mentions--I saw them as pretty significant. The home testing study found that doing cognitive testing made pwME exceed their...

This is a good description of the biographical disruption I faced due to ME, becoming ill at 21 while still in college.

Well this makes a lot of sense. People with explained illnesses are much more in control of their lives than people with idiopathic ones. They are more likely to have: Emotional support of family Recognition by broader society Doctors who care enough to try treatments or write referrals Real...

I read the whole paper. It describes the effect of ME on my social life very accurately, and I feel comforted that other people are going through the same thing as me, and I feel heard because it's published in the sociological literature.