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English-language article in the Budapest Business Journal. It is a promotional piece on long covid, an interview with someone from a private clinic, however, there are some interesting bits: This part is not particularly great: If no serious organ abnormalities are found, symptoms are often...

There's a new article: https://www.timesofisrael.com/feels-like-dying-israel-leading-world-by-recognizing-sorrow-of-chronic-pain/ It says that these rights are actually extended to chronic fatigue syndrome too, not just fibromyalgia and it puts a bit more emphasis on CFS this time.

ABSTRACT Objective The prevalence of pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) has been estimated from an ethnically and sociodemographically diverse community-based random sample of 10,119 youth aged 5–17. We assessed whether a salivary biomarker of fatigue could...

I don't really have a dry mouth but feeling incredibly thirsty for no reason is an early sign of PEM for me. And yes, it doesn't matter how much I drink, the thirst just stays, it is unquenchable for quite a while.

This one is from Slovakia, not Hungary this time. (Slovakia has a sizeable Hungarian minority for historical reasons and they have their own Hungarian-language news sites, so I can read about what's going on there.) So the thing is: apparently, they don't have any long covid clinics there yet...

"Israel will recognize fibromyalgia, a once widely dismissed illness that involves chronic muscle pain, as a disability. People with the condition will be recognized as disabled within a few weeks, and will be able to claim up to 40 percent of a full disability allowance, Welfare and Social...

Yes, thanks, I saw that nothing was highlighted when I tried to copy it and just assumed that it cannot be copied for whatever reason (which would make sense on certain websites but not really for a patient organization, so it seemed quite odd of course). I

I very much agree with this, I've had the same period-related experience (although for me it returned to almost normal when I got better after the first two really difficult years). The point is that I regarded this as one of the less dismissible symptoms, since this is really not something...

Maybe you can ask here?: aokumu@stanford.edu They say you have to mention fecal swab study in the subject line to participate but you can probably ask them some questions too.

ME Action doesn't let me copy the text, so here is the link with the details: https://www.meaction.net/2021/10/19/stanford-study-enrolling-now/ In short: It's Ron Davis's lab, they are looking for severely ill, mostly bed-bound people from the US. What is needed: fecal swab sent by mail +...

Earlier I wrote about the roughly 1 million euros the Hungarian National Academy of Sciences is planning to spend on high risk research in connection with "post-covid phenomena". They want to fund 6-12 studies in the next 2 years. I think the original deadline was October (with actual research...

I know I sound like a stalker but if anyone is interested: the original post about becoming a patron has been deleted both from the MEA website and Facebook. This is what you can read in the comment section of today's FB post: ME Association limited who can comment on this post. (I'm a follower...

ME Association Trustee’s Statement re: the appointment of Professor Findley as Patron of the charity "Following the appointment of Professor Findley as a new patron of the charity on 06 October, and while we have received a good number of messages supporting the decision from both charity...