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  1. Wyva

    Persistent Symptoms and Associated Risk Factors of COVID-19: A Cross-Sectional Study in Minia, Upper Egypt, 2025, Bassem et al.

    This has happened to me too. My GP was away for some reason and another GP stood in for him. I went there with some throat infection that kept recurring over several weeks. She prescribed me antibiotics. I went back later because my symptoms came back again afterwards and my GP told me this was...
  2. Wyva

    Associations of epigenetic aging and COVID- 19: A 3-year longitudinal study, 2025, Farkas et al

    Oops, you are right, sorry. I have edited my post. ME moment!
  3. Wyva

    Associations of epigenetic aging and COVID- 19: A 3-year longitudinal study, 2025, Farkas et al

    Not strictly long covid but I'm posting this because someone might find it interesting.
  4. Wyva

    Associations of epigenetic aging and COVID- 19: A 3-year longitudinal study, 2025, Farkas et al

    Abstract Aging and COVID- 19 are known to influence DNA methylation, potentially affecting the rate of aging and the risk of disease. The physiological functions of 54 volunteers—including maximal oxygen uptake (VO₂ max), grip strength, and vertical jump—were assessed just before the COVID- 19...
  5. Wyva

    Brainstem Reduction and Deformation in the 4th Ventricle Cerebellar Peduncles in Long COVID Patients, 2025, Christof et al

    I'd like to share some info that made my spidey-sense tingle. This study is associated with the German Prof Stark Institute. Actually this is what made me look this topic up, as recently this place has started popping up in my group as groundbreaking ME/CFS experts. Some hype is growing around...
  6. Wyva

    Structural characteristics and potential antidepressant mechanism of a water-insoluble β-1,3-glucan from an edible fungus Wolfiporia cocos, 2025, Luo+

    Abstract A water-insoluble β-1,3-glucan (Wβ) with a molecular weight of 8.12 × 104 Da was extracted from an edible fungus Wolfiporia cocos. Its backbone was composed of 1,3-β-linked Glcp branched at the C-2, C-4, and C-6 positions, connecting more 1,3-β-linked Glcp with a triple helical...
  7. Wyva

    Europe: News from the European Union and the European Parliament

    Long COVID: assessing work ability, adapting the workplace and supporting rehabilitation. A practical short guide for the workplace (This is another document from the post above, I'm just highlighting its content here):
  8. Wyva

    Europe: News from the European Union and the European Parliament

    European Agency for Safety and Health at Work (EU-OSHA): Long COVID: Rehabilitation and practical workplace support "New publications from EU-OSHA detail how to support workers affected by Long COVID, offering information on rehabilitation and guidance on how to assess work ability and make...
  9. Wyva

    News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary

    The Canary: Poland doesn’t even recognise ME/CFS – leaving one man living with it with no way out from domestic abuse Throughout all this time, Karol has been unable to get a formal diagnosis for his severe ME/CFS, and has only started getting diagnoses for the majority of the other chronic...
  10. Wyva

    Review Long COVID – neurological or somatoform disease?, 2024, Tényi, Tényi, Janszky

    Btw, the author of the original paper only included a short reply to Tényi's letter: Rough translation: Dear Professor, I read with great interest your valuable addition, which confirms the timeliness of the topic I have chosen. Respectfully, Noémi Somorjai I have actually skimmed through...
  11. Wyva

    Review Long COVID – neurological or somatoform disease?, 2024, Tényi, Tényi, Janszky

    I have never got a reply from the editor-in-chief of this journal to my letter but I have found something else. This is not related to ME/CFS but it is a letter to the editor by one of the authors of the paper in this thread, Tamás Tényi. The paper the letter addresses is about how non-binary...
  12. Wyva

    Review (Hungary) Interdisciplinary consensus statement about the diagnosis and treatment of [CFS]/myalgic encephalomyelopathy, 2025, Simonyi et al

    Thanks. I also actually wrote an article about this in Hungarian of course and I'm planning to send both my letter and my article to the Hungarian media as well as key political activists, NGOs etc, basically anyone who may show interest in this. We do actually have independent media here, I...
  13. Wyva

    Review (Hungary) Interdisciplinary consensus statement about the diagnosis and treatment of [CFS]/myalgic encephalomyelopathy, 2025, Simonyi et al

    Just sent this to the Ministry of Interior and the Health Colleges so that they are aware that I know about this. It may be a bit harsh near the end but I want to have a record of this, that this was even actually pointed out to them by me and the gravity of the situation properly explained...
  14. Wyva

    Review (Hungary) Interdisciplinary consensus statement about the diagnosis and treatment of [CFS]/myalgic encephalomyelopathy, 2025, Simonyi et al

    I met János Réthelyi, head of Psychiatry and Beáta Sebestyén from the Ministry. Réthelyi said he is someone who loves patient advocacy and presented himself as someone very open to that. Than basically his second sentence was that this disease is the same as depression just without the mood...
  15. Wyva

    Review (Hungary) Interdisciplinary consensus statement about the diagnosis and treatment of [CFS]/myalgic encephalomyelopathy, 2025, Simonyi et al

    So the story in short (this is mostly what you could read from me about the process if you followed my advocacy - newer info in the next post after this one): First, the Ministry of Interior and the Health Colleges promised me a guideline after my letters. I told them I would like to...
  16. Wyva

    Review (Hungary) Interdisciplinary consensus statement about the diagnosis and treatment of [CFS]/myalgic encephalomyelopathy, 2025, Simonyi et al

    Oh and some "fun" tidbit" from the beginning: "The authors dedicate their study, prepared at the request of the Editorial Board of the Medical Weekly, to the memory of Ignác Semmelweis, on the 160th anniversary of his death." Ignác Semmelweis was the doctor other doctors ridiculed and didn't...
  17. Wyva

    Review (Hungary) Interdisciplinary consensus statement about the diagnosis and treatment of [CFS]/myalgic encephalomyelopathy, 2025, Simonyi et al

    No, and I only know this because I bought the paper so that I can see it. Most papers in this journal are free to read, btw.
  18. Wyva

    Review (Hungary) Interdisciplinary consensus statement about the diagnosis and treatment of [CFS]/myalgic encephalomyelopathy, 2025, Simonyi et al

    This is the Hungarian consensus recommendation for ME/CFS. It is bad news. As some of you may know, I was allowed to see the text before publishing. This was NOT the text I saw. A lot of it was the same or very similar, but key parts were added to the published version. Most of the text is...
  19. Wyva

    Review (Hungary) Interdisciplinary consensus statement about the diagnosis and treatment of [CFS]/myalgic encephalomyelopathy, 2025, Simonyi et al

    Interdisciplinary consensus statement about the diagnosis and treatment of chronic fatigue syndrome/myalgic encephalomyelopathy Simonyi Gábor dr ■ Bedros J. Róbert dr. ■ Réthelyi János dr. Polgár Anna dr. ■ Kiss Emese dr. Chronic fatigue syndrome/myalgic encephalomyelopathy is a disease...
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