This has happened to me too. My GP was away for some reason and another GP stood in for him. I went there with some throat infection that kept recurring over several weeks. She prescribed me antibiotics. I went back later because my symptoms came back again afterwards and my GP told me this was...
Abstract
Aging and COVID- 19 are known to influence DNA methylation, potentially affecting the rate of aging and the risk of disease. The physiological functions of 54 volunteers—including maximal oxygen uptake (VO₂ max), grip strength, and vertical jump—were assessed just before the COVID- 19...
I'd like to share some info that made my spidey-sense tingle.
This study is associated with the German Prof Stark Institute. Actually this is what made me look this topic up, as recently this place has started popping up in my group as groundbreaking ME/CFS experts. Some hype is growing around...
Abstract
A water-insoluble β-1,3-glucan (Wβ) with a molecular weight of 8.12 × 104 Da was extracted from an edible fungus Wolfiporia cocos. Its backbone was composed of 1,3-β-linked Glcp branched at the C-2, C-4, and C-6 positions, connecting more 1,3-β-linked Glcp with a triple helical...
Long COVID: assessing work ability, adapting the workplace and supporting rehabilitation. A practical short guide for the workplace
(This is another document from the post above, I'm just highlighting its content here):
European Agency for Safety and Health at Work (EU-OSHA): Long COVID: Rehabilitation and practical workplace support
"New publications from EU-OSHA detail how to support workers affected by Long COVID, offering information on rehabilitation and guidance on how to assess work ability and make...
The Canary: Poland doesn’t even recognise ME/CFS – leaving one man living with it with no way out from domestic abuse
Throughout all this time, Karol has been unable to get a formal diagnosis for his severe ME/CFS, and has only started getting diagnoses for the majority of the other chronic...
Btw, the author of the original paper only included a short reply to Tényi's letter:
Rough translation:
Dear Professor,
I read with great interest your valuable addition, which confirms the timeliness of the topic I have chosen.
Respectfully,
Noémi Somorjai
I have actually skimmed through...
I have never got a reply from the editor-in-chief of this journal to my letter but I have found something else. This is not related to ME/CFS but it is a letter to the editor by one of the authors of the paper in this thread, Tamás Tényi.
The paper the letter addresses is about how non-binary...
Thanks. I also actually wrote an article about this in Hungarian of course and I'm planning to send both my letter and my article to the Hungarian media as well as key political activists, NGOs etc, basically anyone who may show interest in this. We do actually have independent media here, I...
Just sent this to the Ministry of Interior and the Health Colleges so that they are aware that I know about this. It may be a bit harsh near the end but I want to have a record of this, that this was even actually pointed out to them by me and the gravity of the situation properly explained...
I met János Réthelyi, head of Psychiatry and Beáta Sebestyén from the Ministry.
Réthelyi said he is someone who loves patient advocacy and presented himself as someone very open to that. Than basically his second sentence was that this disease is the same as depression just without the mood...
So the story in short (this is mostly what you could read from me about the process if you followed my advocacy - newer info in the next post after this one):
First, the Ministry of Interior and the Health Colleges promised me a guideline after my letters. I told them I would like to...
Oh and some "fun" tidbit" from the beginning: "The authors dedicate their study, prepared at the request of the Editorial Board of the Medical Weekly, to the memory of Ignác Semmelweis, on the 160th anniversary of his death."
Ignác Semmelweis was the doctor other doctors ridiculed and didn't...
This is the Hungarian consensus recommendation for ME/CFS. It is bad news. As some of you may know, I was allowed to see the text before publishing. This was NOT the text I saw. A lot of it was the same or very similar, but key parts were added to the published version.
Most of the text is...
Interdisciplinary consensus statement about the diagnosis and treatment
of chronic fatigue syndrome/myalgic encephalomyelopathy
Simonyi Gábor dr ■ Bedros J. Róbert dr. ■ Réthelyi János dr. Polgár Anna dr. ■ Kiss Emese dr.
Chronic fatigue syndrome/myalgic encephalomyelopathy is a disease...
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