Search results

  1. Jonathan Edwards

    United Kingdom: Sheffield ME & Fibromyalgia Group News

    I have not listened to this but FND is not the new name for MUS or anything like it. Historically, FND is a relatively small category that includes non-epileptic seizure and movement disorders that has been around, and separate from other things, under various names for decades. I get the...
  2. Jonathan Edwards

    The biology of coronavirus COVID-19 - including research and treatments

    It sounds very plausible to me. But it will only be a limited sector of the population - maybe 1-2 million. It might have a useful impact on health care workers, although many in the front line have already been infected. Unfortunately there is still no sign of any meaningful strategy for...
  3. Jonathan Edwards

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    I don't think is that bad, but I think it is worth pointing out that the guidelines are based opinion rather than evidence and this needs to be explicit. I do not plan to make a submission myself. Any thoughts that come to my mind I will put down here forepeople to consider. If S4ME were to ask...
  4. Jonathan Edwards

    How to assess if a research paper has used best-practice protocols?

    Written by Trisha Greenhalgh, who is a great fan of BPS and is currently screwing up Long Covid the same way!
  5. Jonathan Edwards

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    https://www.theguardian.com/world/2020/nov/19/long-covid-overlap-emerges-with-me-including-debate-over-treatment Article in the Guardian quoting Amy Small. Generally well written I think but at the end the inability of medical 'experts' to stop insisting that exercise is good and...
  6. Jonathan Edwards

    Towards personalized assessment of fatigue perpetuating factors in patients with [CFS] using ecological momentary assessment, 2020, Knoop et al

    Ecological momentary assessment conjures up the action immediately prior to moving ones boot just a bit to one side when walking on a country path to avoid some unpleasantness.
  7. Jonathan Edwards

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Yes, that is intended for psychologists I presume, so the need for the new propaganda is not there. One of the salient features of the BPS crowd seems to be that they have no idea that they have been in the habit of discussing patients amongst themselves as if they (patients) were dumb animals.
  8. Jonathan Edwards

    Towards personalized assessment of fatigue perpetuating factors in patients with [CFS] using ecological momentary assessment, 2020, Knoop et al

    It's psychosomatic research. It seems to be real but it is just a manifestation of the authors distorted beliefs. I was a bit confused about perpetuating factors that didn't;t perpetuate though.
  9. Jonathan Edwards

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    I am not so sure it is weird. The therapies are founded on popular public prejudice about ME - that all you need to do is get in the frame of mind to get up and get back to normal activity. The theories were just a pseudoscientific elaboration of those prejudices.
  10. Jonathan Edwards

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Briefly, yes, although it consisted mostly of tangential justifications of practice by some of those present.
  11. Jonathan Edwards

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    I suspect that the therapists are completely dissociated from the PACE authors now. Certainly, I was led to believe that PACE was ancient history of no relevance to current practice. There are two different motivations at play. One is job retention (therapists). The other is protection of...
  12. Jonathan Edwards

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Actually their spokesperson said exactly the same thing in effect.
  13. Jonathan Edwards

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    This sounds very much the line that is being sold in a united front by psychologists and physiotherapists like those that I met at the NICE committee. It was suggested that my critique of PACE was irrelevant because therapists have moved on from the deconditioning idea, which is no longer the...
  14. Jonathan Edwards

    A Cytokine-based model for the pathophysiology of Long COVID symptoms, 2020, Low et al

    It doesn't make any sense because cytokines do not seem to be released either in ME or Covid much. The bit about cancer drugs is incorrect and irrelevant. I am afraid I think this is an advert for a private healthcare facility touting for business selling the same quackery to Long Covid people...
  15. Jonathan Edwards

    The biology of coronavirus COVID-19 - including research and treatments

    I don't quite follow that. All our knowledge of reality is based on probability, nothing is more real than that. But I agree that problems arise because false assumptions are often made in calculating probabilities or the extent to which they can be extrapolated to new contexts.
  16. Jonathan Edwards

    The biology of coronavirus COVID-19 - including research and treatments

    That is actually the reasoning behind all trials that are analysed statistically. Vaccine studies just make it obvious. You use statistics because you know that the end result for any oe person involves a mish mash of unknowable causal factors. So you take two groups who on a random basis ought...
Back
Top Bottom