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    Differential Fatigue Profile in Patients with Post-COVID Condition, Fibromyalgia, and Multiple Sclerosis, 2025, Silvia Oliver-Mas et al

    Silvia Oliver-Mas is also an author on this 2023 paper "Hippocampal subfield abnormalities and biomarkers of pathologic brain changes: from SARS-CoV-2 acute infection to post-COVID syndrome"...
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    Protocol Minirico Mental Intervention and Nicotineamide Riboside Supplementation in Long Covid

    It's incredible to see it written out like this. Real cult brainwashing stuff.
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    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    (Not sure if this is the right place to post this, re evidence of harms; feel free to move) Just wanted to flag up this sentence: "Awareness was growing of the ineffective or possibly harmful16 effects of approaches such as a graded exercise programme" in...
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    Effectiveness of a personalised self-management intervention for people living with long covid (Listen trial), 2025, Jones et al

    "We don't understand why what we're doing isn't working, so you should definitely keep paying us to do more of it."
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    Preprint Digital health app data reveals an effect of ovarian hormones on long COVID and myalgic encephalomyelitis symptoms, 2025, Male+

    Is it possible to see how many women's symptoms were unaffected by menstrual phase? (I ask because I'm one of them and I don't think I can be that unusual.)
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    Need for Controllability & Predictability questionnaire (NCP-q): psychometric properties & preliminary findings in a clinical sample, 2024, Ramakers

    This is the kind of thing that gets weaponised against autistic people who benefit from familiarity and predictability, to imply that they're just being "controlling" and "manipulative".
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    Cortisol and α-amylase awakening response in children and adolescents with functional neurological (conversion) disorder, 2022, Chung et al

    "Slow-paced breathing improves HRV and calms the nervous system" is one of those articles of faith for all the wellness devotees and mind-body proponents, so I wouldn't be at all surprised if it turned out that the reality is a little more complex. (My own HRV decreases with slow-paced...
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    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    From Hilda's blog at https://absolutelymaybe.plos.org/2025/01/24/when-journal-scientific-society-and-community-values-clash/ Did this recommendation by the IAG make it into any of Hilda's "monthly" updates in 2024?
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    Identification of an immunological signature of long COVID syndrome, 2025, Guerrera et al.

    There were only 10 Long Covid patients in this study.
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    Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS

    Interesting to read this in conjunction with the other thread about how doctors need more self-compassion because it's so stressful for them having to deal with patients who have unexplained symptoms.
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    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    Great idea, to help patients understand how they can train their nervous system through the wonders of neuroplasticity to affect how the balls in the lotto machines will fall - the healing power of mind-balls interaction.
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    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    I feel quite livid that money is being spent on this let's-all-pretend-we're-doing-science!! stuff while in the real world real people are having their lives ruined by a disease that has absolutely and precisely nothing to do with one's willingness to press or not press a damn button.
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    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    So there's a big overlap, with the lower bound only 0.1 of a point apart and the upper bound 0.8 of a point apart, and most participants in both groups falling in the shared area. But it's being sold as a group difference that allows researchers to hypothesize about the behavioural preferences...
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    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    Or perhaps it suggests that people who are ill may have particular pressures influencing their choices in lab-based tasks that have no relevance to their real-world activities, compared to how healthy people might approach the same task under the experimenter's eye. (edited to add: I would be...
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    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    i.e. the LC patients' interoception was accurate, which will be annoying for those at the NIH who want LC to be an 'interoceptive disorder'.
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    News from the Institute of Neuroimmune Medicine (INIM), NOVA, Nancy Klimas

    It might be an accessible income stream for some people who haven't actually recovered to the point where they could go back to their previous jobs.
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